Give Kelsey a Fighting Chance with CME Therapy

Hey friends and community!

My name is Chrystien. I’m a single mom and raising funds on behalf of my daughter Kelsey, affectionately known as KP or Princess. She is the definition of a fighter and we have met yet another opportunity to see her through to healing and help her gain some independence. The funds raised will go toward the program costs at the NAPA Center, where Kelsey is enrolled to participate in their multifaceted intensive therapy program, as well as transportation and lodging for the 3 weeks we will be there.

Kelsey has had a very eventful medical journey and, as a result, is currently non-verbal, has a global development delay, became partially deaf, was diagnosed with Cerebral Palsy, is a brain cancer survivor, and continues to battle epilepsy. (Story continues at the end)

Our goal is to raise all the funds necessary by October 10, 2022.

The program that Kelsey was accepted to has few locations worldwide and very limited space each season/semester so we are thrilled that she qualified and was able to get in! Now we just need help making sure that we can get her there, the services are covered, and we'll have somewhere to stay since it's 800+ miles from home.

Here's a few ways the funds will be used:

We're also raising funds by selling T-shirts through Bonfire, a t-shirt for a cause organization. Check them out here!

We appreciate any and all donations, no matter the size because it helps us reach our goal!

Sincerely, thank you from the bottom of our hearts! <3

 

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Here's a snippet about Kelsey's journey thus far…

At 9 weeks old she started having unexplainable seizures which was quickly diagnosed as focal epilepsy after tests and scans were done. Soon after, when there was no real change from treatments, the seizures changed and the docs diagnosed her with Infantile Spasms. Imagine having episodes 10-15 times per day and each time being a cluster of anywhere between 15-30 or more seizures each! That's a lot for anyone especially a 4 month old. As you can imagine, development suffered significantly during the first year of her life.

At some point the frequency of seizures decreased but in November 2016, at 18 months old, a rare and malignant tumor (PNET - primitive neuroectodermal tumor) was discovered on the left side of KP's brain and it was confirmed cancerous.

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