Hi everyone! I’m the mum of beautiful Lena (15months) and mum of Oliver (3).

Update : Lena has been having problems feeding, she needs a possible Peg feed. This isn’t covered by her NDIS.

we are working on it and it’s a slow process.

she hasn’t reached any milestones and she now has lumbar scoliosis. She hasn’t gotten any better. We are going to Sydney sometime in the next 3 months to meet with a Multidisciplinary team. I have no idea what the outcome will be for her.

UPDATE; 

Lena has come back positive unfortunately for a chromosome mutation. She will need interventions by multiple people (OT, Physio etc) for many years to come. 

Lena has had trouble since birth (global delay, feeding issues, TTN on birth, NG tube, NICU care) and we’ve just recently found out she has something called “Hydrocephalus”: which is essentially spinal fluid building up on her brain. 

I have been travelling to and from appointments by myself weekly, sometimes 4-5 times a week. So far her appointments haven’t been local. 

We are also trying to find a new home to live in (before the end of the year). 

anything and everything helps us, so please if you’re able to help even with the smallest donation we would forever be grateful for the help we can get. No donation is to small or big. 

This will go toward bills, travel/car repairs, parking, accommodation if and when needed & anything else needed for Lena. 

Everything is appreciated and will help us so much getting to these appointments and getting our beautiful daughter the help she so desperately needs.

Thank you everyone for your donations, it went such a long way and ensured Lena would get the support she needed and ensured I was able to get her to her appointments.