Mackenzie’s Mountains: Our Journey

Let’s help make her, possibly last, Christmas one to remember.

If you have met me, great. Hello. If you haven’t or you don’t remember who I am, great. Hello. My name is Mariah. My two kids are my entire world and have always been and will always be.

 The big one, that’s Luca. He is 9. He is the best brother and kid that is around. He is quirky and can never decide on one thing to like because he just likes everything. He is kind and polite and respectful. Unfortunately he has gotten the short end of the stick many times, as much as we try to avoid it, being as his sister is very complex. Given this, he often has to entertain hisself and keep busy while we provide effort to his sister. He deserves the world and then more and he is the most amazing kid you will ever meet. He doesn’t ask for much, if anything, except for going to Taco Bell and chipotle. He has autism.

The little one, yeah that’s are complex one. She was complex from pregnancy on. While many are familiar with her story, if you are not then please go to my page and read up. Many people see my posts and scroll past. Usually I would to. The reason we keep seeing this little girl on news feeds and stories and social media is an important one. She has a condition that is rare and complex called Scimitar Syndrome and one of the most severe in her case. Doctors have given her the nickname Mystery Mackenzie because she does not follow medical textbooks. She writes them. She’s had procedures done that have changed the way doctors do things now. She’s had surgeries that are not typically done for her case. She’s had procedures and complications that have not happened in doctors careers. Those same complications would typically result in death. But she has defied those odds. The past three months in our family has been the hardest time we have been through as a whole, probably ever.

Are there going to be ups and downs, yes. Do we focus on those, no.

She is here for a reason, after everything she has been through and we are her parents for a reason. While we were made to be their parents we still need help.

The reason this pending surgery keeps getting brought up is because there are unspoken fears that she may not make it through it. The complications are real and serious and we are terrified. We have given up so much just to fight for this family. Luca’s childhood has been overshadowed. Mackenzie’s childhood has been anxiety ridden. Her dad and I have had to be apart because one kid is in a hospital and hour away and the other is home. I’ve had to stop working and consider my whole education and career because of her. We make do. We don’t dwell. We do what we have to do.

Our family motto has become, “It is what it is.”

This could be her last Christmas. Is that hard to write, yes. Is it a hard reality to consider, yes. Is it fair, no.

 Many have said, you guys are so strong. I don’t know how you do it. I could never. If it were me….(fill in the blank.) Truth is, these kids were given us for a reason. They were given this village for a reason. We want to make both of their lives as amazing as we can with all we are given and work for. But sometimes we need help. If you come across this and can’t donate please share. If you can donate, we thank you. If you can purchase off of Amazon, we appreciate it. If prayers are what is on the table then we have a seat ready for you. Thankyou for everything.

Paypal: 
[email redacted]

Venmo:
@Mariah-Clay-11

Amazon Wishlist: www.amazon.com/hz/wishlist/ls/2NIPLIIS2SYIL?ref_=wl_share GoFundMe: gofund.me/aa1b3779