Maddie Proctor

We are the Proctor family and we are fundraising for our daughter, Maddie.

Maddie has a rare, neurological disease called Rett Syndrome. This occurs at conception and is a spontaneous mutation in the MECP2 gene. There is no known way to prevent Rett Syndrome. Currently, there are around 350,000 worldwide with girls, and in some rare cases boys, with Rett Syndrome.

We are raising funds for Maddie's medication, Daybue, as well as her therapies. Her therapy schedule is Monday-Friday and consists of up to 10 therapies a week that include occupational therapy, physical therapy and speech therapy. We also pay a therapist to come in every other month for intensive therapies. These intensive sessions cost $500 a week and focus on physical therapy and helping Maddie learn to walk.

Anything is appreciated. We are grateful for anything. This is our best way of giving our baby girl the best fighting chance at not just a life but a thriving one full of happiness, and endless love. Thank you all. God bless.