#GoFundSki

This is the kind of appeal that the family of Elizabeth Sciabarra (Ms. Ski to her students) never wanted to post. But we are facing some very difficult realities. My sister became seriously ill and nearly died in November 2020, which was followed by extensive spinal surgery in mid-March 2021. We nearly lost her again in mid-October 2021. Since that time, she has been receiving in-home hospice. As her devoted brother, I have been her primary caregiver—despite dealing with my own lifelong medical issues. As my own health has been compromised over these many months, we have been compelled to turn to health aides to assist with my sister’s in-home care.

 

My sister brings in a pension from her many years of service as an educator in the New York City public school system. She also brings in a Social Security retirement check. Given the state of American healthcare, she is in the unenviable position of being in that great “middle” ground where so many others find themselves—not “wealthy” enough to cover all her medical expenses; too “wealthy” to qualify for Medicaid. As a woman who has worked for over fifty years, and paid millions of dollars in taxes to local, state, and federal governments, she qualifies for a single Medicare home health aide, 4 hours a day, 5 days a week, though she needs 24/7 care.

 

Having maxed-out some assistance from the Council of Supervisors and Administrators for both the 2021 and 2022 calendar years, she is spending, on average, approximately $15,000 a month on aides and other non-insured medical supplies—more than she earns with her pension and Social Security combined. She has sold her car, exhausted her savings, and cashed-in retirement accounts—paying taxes on that too. Complete financial collapse can be avoided if my sister is placed in a Medicare-insured inpatient hospice, which would constitute a dramatic change to her quality of life. She wanted to remain at home, but without the financial capacity to do so, she will be compelled to make a decision that will break all our hearts. And hers most of all. Out of personal embarrassment and a sense of pride, she never wanted to make an appeal such as this. But after being in-and-out of hospitals and medical facilities for 17 months, even she realizes that this situation is financially unsustainable, threatening her ability to pay for even the basic necessities of life ... food, clothing, and shelter.

 

We appreciate anything anyone can offer; we have no hope of paying anyone back. We only hope that a woman who, as an educator, devoted her life to helping thousands upon thousands of children and young adults, can raise enough funds that would allow her a level of dignity moving forward—despite the serious health challenges she continues to face every hour of every day.

 

Sincerely,

Chris Matthew Sciabarra (on behalf of my sister)

 

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Addendum (4 April 2022)

 

#GoFundSki Goal Exceeded!

My sister, Elizabeth Sciabarra, wanted to extend her heartfelt appreciation to every single person who has donated to the #GoFundSki campaign to raise $150,000 toward her care needs as she remains in-hospice at home. Over a thousand people have contributed since this project was posted, at 5:26 pm on Friday, March 26, 2022. The goal has been exceeded—in just ten days!

Ultimately, what has most moved my sister are the words of encouragement she has received and the personal reminiscences that have been posted to the #GoFundSki page. These are the kinds of testimonials that one reads at a memorial. But they are now a living testament, which she is processing daily in a deeply emotional way. It has allowed her to truly grasp that her life really did count—and continues to count—in terms of the professional and personal impact that she has made. This outpouring of love and support is the greatest gift of all.

My sister’s at-home care is a constantly evolving situation. Every cent we raise helps to maintain her quality of life moving forward during this increasingly difficult period. We appreciate any additional contributions—whatever the amount of your donation.

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Addendum (11 October 2022)

Nearly two years ago, in November 2020, my sister, Elizabeth Sciabarra—“Ms. Ski” to her students—nearly died. She has gone through agonizing hell for two years now, through surgeries and crippling illness. By October 2021, near death again, she was placed on in-home palliative care, under the assumption that she would not last six months. She confounded medical authorities and now must be re-certified for palliative care every two months because she refused to die on Medicare’s schedule.

With my sister living on a pension, Social Security, and dwindling savings, ineligible for Medicaid, we began a #GoFundSki campaign on March 25, 2022. As a testament to the impact she made as an educator of fifty years, influencing the lives of thousands of people, we exceeded our $150,000 goal within ten days. That money was designed to keep my sister at home, with the assistance of 24/7 home health aide coverage. We projected expenditures of approximately $15,000 per month on aides and other non-insured supplies to turn our home into a hospice. Unfortunately, $15,000 could not even cover our home health aide assistance; with supplies and other necessities, we have been averaging $20,000 per month, as inflationary pressures rose across the board. Nevertheless, our #GoFundSki campaign raised enough money (clearing $165,000+) to sustain my sister thru January 2023.

It was to my sister’s profound embarrassment that we had to pitch a #GoFundSki campaign to begin with. But at this juncture, we are faced with some very tough decisions. My sister is stable and has a strong heart. With a very strong will to live, she has no intention of dying anytime soon. Once the current money runs out, we will have no choice but to place her in a Medicare-insured inpatient hospice—as long as that choice is open to us and that she is not de-certified from palliative care simply because she’s outlived Medicare guidelines.

It is our conviction that my sister has survived this long precisely because she’s been at home getting loving, superlative, top-notch care that she would never have gotten in any inpatient facility, be it a hospice or a nursing home.

We are therefore raising our #GoFundSki goal to $325,000, which means that we’re hoping to clear an additional $160,000 with this extended campaign to cover her care way beyond January 2023. To be blunt: If Ms. Ski outlives the additional finances raised for her, we will not extend our #GoFundSki campaign. And difficult choices will be made for her.

We have updated this campaign several months before the current money runs out and do not presume that we will be able to raise the same amount of money we asked for at the end of March 2022. But this goal has been set—and we will be eternally grateful for anything we can raise toward meeting it.

Fully aware of the increasing economic pressures that have impacted so many people throughout this country, we thank every single person who has already contributed to my sister’s welfare—and all those who might still be able to contribute.

Sincerely,

Chris Matthew Sciabarra (on behalf of my sister)