Grandson Noe has Noonan Syndrome

Hi, my name is Leslie!

I am raising funds for my daughter’s (Melissa’s) family. My grandson Baby Noe (one yr old) has been diagnosed with Noonan Syndrome, a genetical disorder. He also has Extraventricular Encephalopathy. His muscles and skeleton are underdeveloped and must be carried almost 24/7. He seems to be intelligent and is very friendly.

Finding the diagnosis and treating Baby Noe during this year has required visits to the Geneticist, Neurological Surgeons, Pediatricians and PCP for many tests, scans and breathing treatments during multiple infections.

Melissa is working multiple jobs but finances are running short, and Baby Noe needs additional tests and treatment.

We believe God is working with their family and feel blessed to learn this much about Baby Noe’s health. His Dad, two sisters and brother love him very much and help care for him. We beg your compassion, prayers and financial help in our need! God bless you!

Send funds to

Venmo@Melissa Benitez-Ceja or

[email redacted]