Hiking 200,000 feet for Sophie

Hi my name is Owen and this is Sophie

She has an extremely rare genetic disorder called Multicentric Carpotarsal Osteolysis or MCTO. This disorder causes the disappearance of the bones in her joints over time, currently affecting her hands and feet, and progressively will continue to limit her mobility and function in others.

There is not much information on this disease due to only about 30 cases ever recorded. It is known to lead to kidney failure and progresses as she ages. She needs help getting up the stairs and has to wear ankle braces in order to try to walk properly. She sleeps wearing night splits on her hands and feet as well. It will only get worse unless and therapeutic is discovered. Sophies Neighborhood was started by Sophie's parents to try to raise enough money to find a cure. We are trying to help her. We are fundraising by hiking. We will be hiking 200,000 vertical feet for Sophie in 2024. Please consider donating to help Sophie. All money raised is donated to Sophie's Neighborhood. Thank you so much,

-Owen

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For other hikes/info, visit: https://milesandmunchiesforsophie.godaddysites.com

For hiking updates and information follow us on Instagram at @milesandmunchiesforsophie

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For more information about Sophie's Neighborhood go to sophiesneighborhood.org