![Main fundraiser photo](https://images.gofundme.com/o4e0bgELHxp9hy5ZjCL9vMuGG3Q=/720x405/https://d2g8igdw686xgo.cloudfront.net/50638076_1598142970699701_r.jpg)
Donation to St Jude’s in Griffin R’s name
Tax deductible
Shortly after birth, Griffin was diagnosed with a mutation in the FARSB gene, resulting in an incredibly rare disorder affecting multiple organ systems. Although he fought valiantly throughout most of his first year, his liver ultimately failed and he passed away peacefully while being held by his mom and dad. Griffin’s struggles and story highlight the importance of and the need for continued research of genetic disorders in children, gene therapies, and hopefully, cures for these difficult and sometimes fatal diseases. We are asking for your help in making a donation to St. Jude’s Children’s Hospital Genetics Department in Griffin’s name. All money donated to this GFM goes directly to St. Jude’s Children’s Hospital. Thank you.
Organizer
Jim BlackPowderVol
Organizer
Chicago, IL
St. Jude Children's Research Hospital
Beneficiary