Prayers for Cassidy Amber
Donation protected
Cassidy was born with a syndrome called O.S.C.S. ( Osteopathia Striata with Cranial Sclerosis ) , A big fancy word for
Cassidy is eleven years old, when Cassidy was born she had to get a Tracheotomy to help her breathing, and feeding tube to help her eat because she could not do those things on her own. When it comes to life, Cassidy is the biggest ball of joy and has been fighting for it from day one. Cassidy still has both the trach and feeding tube, and can not talk without the help of a communication board/machine. She can't sit up, stand, or walk without help either. It takes a lot of people to help her through all of this. Cassidy has 20 teams of doctors to help keep her strong along with physical therapy once a week. She also has RNs with her in our home, 16 hours a day. She goes to school, where she has an RN to help her there as well. She is very bright and loved by all the staff and children. Cassidy's prognoses is blindness and deafness, and is to loose the ability to smile because of the lose of those things. So far her hearing is the only thing she is loosing a little more each year. But Cassidy is staying out of the hospital more and more every year and is getting stronger by the minute.
Cassidys list of diognosis
1. Partial deletion of chromosome X resulting in
O.S.C.S.
2. Diffuse non progression of myelination , (Myelination is the process by which a fatty layer, called myelin, accumulates around nerve cells (neurons). Myelin particularlyforms around the long shaft, or axon, of neurons. Myelination enables nerve cells to transmit information faster and allows for more complex brain processes. Thus, the process is vitally important to healthy central nervous system functioning.)So this did not happen
3. Laryngotracheomalacia (air-way collapses)
4. Tracheostamy tub with bi pap dependence (fror breathing)
5. Reacurrent tracheiteitis (is a bacterial infection of the windpipe (trachea).
6. Progressive bilateral conductive hearing loss
7. Vonwillebrands disease (is a bleeding disorder. It affects your blood's ability to clot.)
8. Seizure disorder
9. Right hip subluxation (Partial dislocation of the hip - the ball of the hip joint is only partially in the socket.)
For every negative there are positives
1. Cassidy loves Life
2. Cassidy loves the ABC song. She smiles and laughs and kicks every time she hears it.
3. When she sees someone she reaches out and smiles to draw them in.
4. She loves to play the guitar and the piano.
5. She is very photogenic and will smile big as soon as she sees a camera or phone.
6. She like to watch Barny and the Little Engine that Could.
7. She all ways keeps trying she wont give up.
8. She can brighten your day with one SMILE even if she is the one that is sick.
9 .Cassidy touches lives every day and we love her very much.
Hi there everyone my name is Cassidy Adair.
I was born with a very rare syndrome called O.S.C.S. ( Osteopathia Striata with Cranial Sclerosis ), this is a big fancy word for thin bones, thick skull.
This led to other complications. I am trached and ventaltor dependant. I require nursing care and my parents to take care of me. When there is no nure to watch me sometimes my parents have to call out of work and/or stay up all weekend with me and go to work the next day, because I can not take care of my self. I have a myelin disorder that make me floppy like a little baby.
I love going place the outdoors, I also have 2 dogs that play with me so much and 2 cats, one named Reese who saved my life. Reese is always by my side.
I love going to school I love to interact and learn I have so much fun!!!.
I love to smile and laugh! I can't talk, but I do not have a communication device to interact with others, I get my point across in other ways too. I know my parents are working hard to keep me safe and get me things that I need.
If you visit and read my facebook page you will see through all the heart ache, hospital visits, ER visits, inpatient stays, and physical thaerphy I go though. I will smile and laugh through just about anything. I love life so much.
We love our house have been here for 11 years we have done some improvements on the house for hadicap access but we ran out of funds. We are behind on our house payments and we tryed for a hardship request but that did not work out. Now we have to come up with money to prevent forclosure. We have work so hard to stay in our home and don't want to leave it. We need help to stay, we love our pets very much Cassidy medical equimpemnt supplies take up 2 rooms.
Toward the end of last year Cassidy medical van tranmission went out that cost us $3250 to fix, Cassidy medical van ran for a while but than the engine died, with her van being in the shop we ask my dad to borrow his truck. Its a full size chevy pick up truck that get 10 miles per gallon. Well it worked but Cassidy being 4 foot tall and 71 lbs and only having space for 3 people at a time plus her medical equipent that we had to take with us, it was a tight fit and we could never go out together with the whole family. Her wheel chair had to be lifted in the back of the truck bed when it rained we put a tarp down, so everything didn't get wet. That was hard as well. This went on for a few month the van had a lot more problems. The first time we went to pick up the van and bring it home, the van died with Cassidy in there, Delynn (mom) did get back to the shop. Well with all the work they'd done already, we ended up getting a used engine after we had a talk with the shop the total bill came to $2250.00.
My car ended up costing $700.00 to repair.
The water heater went out in January and that cost $1500.00 to have and new one installed.
Wage garnishment of $800.00 a month that really put us so much further behind. The garment was for a lot of very old debt/medical expenses. There is also sometime a lot of unpaid leave from work that has to be taken due Cassidy being very sick or lack of nursing care.
There is also Cassidy's medical needs for equipment supplies theaphy and hospital visits.
This is some of the hardships we've endured over the years that has set us behind on payments.
We are in desperate need of help. We love our little girl so very much and her brother, sister and of courses our pets do too.
This is more than just a house we are trying to save, it's a home to our whole family. All our kids were raised here. This is all our kids know as home. They who are very active and involved around this area and school. Through all the chaos we let them know that we still love them very much. My wife and I were also married in the backyard. There are so many memories in this home of ours. We would hate to give it up.
I can say this is very hard to ask for help and please read Cassidy page it will give you a insight of our lives. There is nothing easy about staying up all weekend taking care of Cassidy and going to work on Monday due to lack of nursing coverage. But I'll do anything for our baby girl. It is so very hard when your little girl is sick and fighting for her life. We all love her so very much we do everything it take to make sure she has a very good life. She love people she has a lot of humor she brings so much happiness and joy to our lives She is a very amazing little girl with such a very happy spirt full of love.
Thank you for taking time to read into our story <3 Your Donations Are Precious To Us
Cassidy is eleven years old, when Cassidy was born she had to get a Tracheotomy to help her breathing, and feeding tube to help her eat because she could not do those things on her own. When it comes to life, Cassidy is the biggest ball of joy and has been fighting for it from day one. Cassidy still has both the trach and feeding tube, and can not talk without the help of a communication board/machine. She can't sit up, stand, or walk without help either. It takes a lot of people to help her through all of this. Cassidy has 20 teams of doctors to help keep her strong along with physical therapy once a week. She also has RNs with her in our home, 16 hours a day. She goes to school, where she has an RN to help her there as well. She is very bright and loved by all the staff and children. Cassidy's prognoses is blindness and deafness, and is to loose the ability to smile because of the lose of those things. So far her hearing is the only thing she is loosing a little more each year. But Cassidy is staying out of the hospital more and more every year and is getting stronger by the minute.
Cassidys list of diognosis
1. Partial deletion of chromosome X resulting in
O.S.C.S.
2. Diffuse non progression of myelination , (Myelination is the process by which a fatty layer, called myelin, accumulates around nerve cells (neurons). Myelin particularlyforms around the long shaft, or axon, of neurons. Myelination enables nerve cells to transmit information faster and allows for more complex brain processes. Thus, the process is vitally important to healthy central nervous system functioning.)So this did not happen
3. Laryngotracheomalacia (air-way collapses)
4. Tracheostamy tub with bi pap dependence (fror breathing)
5. Reacurrent tracheiteitis (is a bacterial infection of the windpipe (trachea).
6. Progressive bilateral conductive hearing loss
7. Vonwillebrands disease (is a bleeding disorder. It affects your blood's ability to clot.)
8. Seizure disorder
9. Right hip subluxation (Partial dislocation of the hip - the ball of the hip joint is only partially in the socket.)
For every negative there are positives
1. Cassidy loves Life
2. Cassidy loves the ABC song. She smiles and laughs and kicks every time she hears it.
3. When she sees someone she reaches out and smiles to draw them in.
4. She loves to play the guitar and the piano.
5. She is very photogenic and will smile big as soon as she sees a camera or phone.
6. She like to watch Barny and the Little Engine that Could.
7. She all ways keeps trying she wont give up.
8. She can brighten your day with one SMILE even if she is the one that is sick.
9 .Cassidy touches lives every day and we love her very much.
Hi there everyone my name is Cassidy Adair.
I was born with a very rare syndrome called O.S.C.S. ( Osteopathia Striata with Cranial Sclerosis ), this is a big fancy word for thin bones, thick skull.
This led to other complications. I am trached and ventaltor dependant. I require nursing care and my parents to take care of me. When there is no nure to watch me sometimes my parents have to call out of work and/or stay up all weekend with me and go to work the next day, because I can not take care of my self. I have a myelin disorder that make me floppy like a little baby.
I love going place the outdoors, I also have 2 dogs that play with me so much and 2 cats, one named Reese who saved my life. Reese is always by my side.
I love going to school I love to interact and learn I have so much fun!!!.
I love to smile and laugh! I can't talk, but I do not have a communication device to interact with others, I get my point across in other ways too. I know my parents are working hard to keep me safe and get me things that I need.
If you visit and read my facebook page you will see through all the heart ache, hospital visits, ER visits, inpatient stays, and physical thaerphy I go though. I will smile and laugh through just about anything. I love life so much.
We love our house have been here for 11 years we have done some improvements on the house for hadicap access but we ran out of funds. We are behind on our house payments and we tryed for a hardship request but that did not work out. Now we have to come up with money to prevent forclosure. We have work so hard to stay in our home and don't want to leave it. We need help to stay, we love our pets very much Cassidy medical equimpemnt supplies take up 2 rooms.
Toward the end of last year Cassidy medical van tranmission went out that cost us $3250 to fix, Cassidy medical van ran for a while but than the engine died, with her van being in the shop we ask my dad to borrow his truck. Its a full size chevy pick up truck that get 10 miles per gallon. Well it worked but Cassidy being 4 foot tall and 71 lbs and only having space for 3 people at a time plus her medical equipent that we had to take with us, it was a tight fit and we could never go out together with the whole family. Her wheel chair had to be lifted in the back of the truck bed when it rained we put a tarp down, so everything didn't get wet. That was hard as well. This went on for a few month the van had a lot more problems. The first time we went to pick up the van and bring it home, the van died with Cassidy in there, Delynn (mom) did get back to the shop. Well with all the work they'd done already, we ended up getting a used engine after we had a talk with the shop the total bill came to $2250.00.
My car ended up costing $700.00 to repair.
The water heater went out in January and that cost $1500.00 to have and new one installed.
Wage garnishment of $800.00 a month that really put us so much further behind. The garment was for a lot of very old debt/medical expenses. There is also sometime a lot of unpaid leave from work that has to be taken due Cassidy being very sick or lack of nursing care.
There is also Cassidy's medical needs for equipment supplies theaphy and hospital visits.
This is some of the hardships we've endured over the years that has set us behind on payments.
We are in desperate need of help. We love our little girl so very much and her brother, sister and of courses our pets do too.
This is more than just a house we are trying to save, it's a home to our whole family. All our kids were raised here. This is all our kids know as home. They who are very active and involved around this area and school. Through all the chaos we let them know that we still love them very much. My wife and I were also married in the backyard. There are so many memories in this home of ours. We would hate to give it up.
I can say this is very hard to ask for help and please read Cassidy page it will give you a insight of our lives. There is nothing easy about staying up all weekend taking care of Cassidy and going to work on Monday due to lack of nursing coverage. But I'll do anything for our baby girl. It is so very hard when your little girl is sick and fighting for her life. We all love her so very much we do everything it take to make sure she has a very good life. She love people she has a lot of humor she brings so much happiness and joy to our lives She is a very amazing little girl with such a very happy spirt full of love.
Thank you for taking time to read into our story <3 Your Donations Are Precious To Us
Organizer
Scott Adair
Organizer
Auburn, WA