Help me get MY life back...Me, Myself & Meningitis

Hi my name is Sophie and as most of you know already my life changed 'over night' for me last July! I thought I had sun stroke as it was the start of the heat wave, I was being violently sick and had the worst headache of my life. Little did I know at the time but I was actually fighting Viral Meningitis. Not only did I have sickness, but excruciating head and eye pain, confusion, delirium and vertigo.

I returned back to hospital after a doctor came to the house and took one look at me and said I needed to be back in the hospital asap I couldn't even wait for an ambulance. The medical assessment unit transfered me via ambulance to a near by hospital and after 3 days getting more and more delirious, I was moved to the ITU unit at The Grange University Hospital and this is where I was in an induced coma for 3.5 weeks, fighting for my life, on a ventilator and I had a tracheostomy fitted. I can't thank my family and friend enough for their support through the most awful time of my life.

Once I'd come around from the coma, I realised I was totally paralysed, not even my eye balls could move and due to the tracheostomy , I also had no voice. It was a hurrendously scary time for me as I hadn't just watched myself, as my family did go through the toughest stage of my fight, so I just kept thinking I was going to die when in reality I was thankfully out of the woods! Even though it had been nearly a month of touch and go for my family, watching me unsure of when I would wake up and how I would be effected by this situation, it was as if this had happened over night for me as I fell asleep with what I assumed was sun stroke and woke up Paralysed.

I was in ITU for 94 days before I was finally well enough to be off the ventilator and with the tracheostomy removed to be transferred back to RGH where I was waiting to be transferred to the University Hospital Llandough Spinal Injury Unit which is where I am now, 270 days since I fell ill. I'm here for rehabilitation as the illness I had has attacked my spinal cord and left it with three legions which are stopping signals from my brain getting to my body, C5 and below. Hopefully with my determination and hard work I can get my independence back as much as possible and get back to living MY life, as at the moment I feel I'm living someone else's with mine on hold.

I've decided to start fundraising as I've realised it is going to be a struggle to go about my daily life without certain equipment, and unfortunately it's not cheap. I also would like the opportunity to try out some private rehab sessions at Hobbs in Bristol which again is not cheap as its specialist private rehabilitation. I'd benefit tremendously from an electric hand cycle attachment for my wheelchair so that I can get around independently over various terrain so I'm not stuck in the house all day. This will also enable me to be able to go out on day trips with my nephew and spend quality time with my family, without being restricted to smooth flat surfaces for my wheelchair. Let alone the emotional and psychological support I will need to get over the madness that has been this past year, as I've definitely suffered with PTSD!

I really didn't want to ask for help with fundraising but I've been spurred on by friends and family who would like to help me get my life back, the one I've so desperately fought to keep AND in doing so we shall spread the word about Spinal Cord Injuries as this isn't something I ever thought would happen to me.

Thank you so much for reading my story, I'm so sorry its so long winded but there isn't a short way of saying all that's gone on in almost a year! Don't worry if you cant donate, simply sharing this link will help enormously! And if you'd like to take part in any fundraising activities that would be greatly appreciated!

Love,

Sophie

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Follow my progress journey on -

www.instagram.com/memyselfandmeningitis