Healing Jordyn's Heart
Donation protected
Follow Jordyn's Journey on her Facebook blog
https://www.facebook.com/groups/672849693123496 /
Jordyn Hope was diagnosed with a critical congenital heart defect in utero at 20 weeks. Hypoplastic Left Heart Syndrome (HLHS)
During the 10 week NT scan Jessica's (Jordyn's Mom) OBGYN noticed some abnormal fluid behind Jordyn's neck. At 11 & 12 weeks Joe (Jordyn's Dad) and Jessica went to a specialist for genetic testing who cleared Jordyn of any known abnormalities. The final exam, the anatomy scan had to wait until their 20 week ultra sound. Before this time, the heart is not developed enough to recognize any heart defects. During the ultrasound scan the specialist noticed something & referred them to get a Fetal Echocardiogram.
During their appointment Joe & Jess' fear became a reality, baby Jordyn's left side of her heart was severely underdeveloped, HLHS.
Within 24 hours Jess & Joe were at Lurie Children’s Hospital in Chicago meeting with Jordyn's team of surgeons, cardiologists, nurses, OB doctors, genetic counselors & the rest of her Heart Heroes!
Jordyn was born on September 20th, 6lbs 11 oz.
She had her first open heart surgery at 4 days old! The Norwood Procedure which converts the right ventricle into the main ventricle pumping blood to both the lungs and the body. A shunt is placed between the pulmonary arteries and the aorta to supply blood to the lungs.
Jordy is still in Cardia ICU & is working hard to go home with her Mom, Dad and Big Sister (Ashlyn!)
Jordy will need two more open heart surgeries, one at 4-6 months, Bi-directional Glenn Operation. With her third, Fontan Operation, between 18-36 months.
Through these surgeries, her team of doctors will be reconstructing and rebuilding a new pathway for her blood to circulate and to allow her to live a healthy and full life.
With this condition there is no cure it is considered palliative care. HLHS is a rare heart defect that only occurs in 1 out of every 4,344 babies born in the United States (per the Center for Disease Control.)
The Cervantes' will be faced with numerous out-of-pocket medical bills and expenses as well as loss of income due to not being able to work. If you are able, please contribute to Jordyn's medical fund; no donation is too small. Our hope is to decrease their financial burden so they can focus on what is most important now—Jordyn.
Joe, Jess, Christian, Karli, Ashlyn and Jordyn appreciate everyone’s love, support, and prayers.
Remember to follow Jordyn's Journey for updates:
https://www.facebook.com/groups/672849693123496/
If you would like to learn more about HLHS:
https://www.cdc.gov/ncbddd/heartdefects/hlhs.html
https://www.facebook.com/groups/672849693123496 /
Jordyn Hope was diagnosed with a critical congenital heart defect in utero at 20 weeks. Hypoplastic Left Heart Syndrome (HLHS)
During the 10 week NT scan Jessica's (Jordyn's Mom) OBGYN noticed some abnormal fluid behind Jordyn's neck. At 11 & 12 weeks Joe (Jordyn's Dad) and Jessica went to a specialist for genetic testing who cleared Jordyn of any known abnormalities. The final exam, the anatomy scan had to wait until their 20 week ultra sound. Before this time, the heart is not developed enough to recognize any heart defects. During the ultrasound scan the specialist noticed something & referred them to get a Fetal Echocardiogram.
During their appointment Joe & Jess' fear became a reality, baby Jordyn's left side of her heart was severely underdeveloped, HLHS.
Within 24 hours Jess & Joe were at Lurie Children’s Hospital in Chicago meeting with Jordyn's team of surgeons, cardiologists, nurses, OB doctors, genetic counselors & the rest of her Heart Heroes!
Jordyn was born on September 20th, 6lbs 11 oz.
She had her first open heart surgery at 4 days old! The Norwood Procedure which converts the right ventricle into the main ventricle pumping blood to both the lungs and the body. A shunt is placed between the pulmonary arteries and the aorta to supply blood to the lungs.
Jordy is still in Cardia ICU & is working hard to go home with her Mom, Dad and Big Sister (Ashlyn!)
Jordy will need two more open heart surgeries, one at 4-6 months, Bi-directional Glenn Operation. With her third, Fontan Operation, between 18-36 months.
Through these surgeries, her team of doctors will be reconstructing and rebuilding a new pathway for her blood to circulate and to allow her to live a healthy and full life.
With this condition there is no cure it is considered palliative care. HLHS is a rare heart defect that only occurs in 1 out of every 4,344 babies born in the United States (per the Center for Disease Control.)
The Cervantes' will be faced with numerous out-of-pocket medical bills and expenses as well as loss of income due to not being able to work. If you are able, please contribute to Jordyn's medical fund; no donation is too small. Our hope is to decrease their financial burden so they can focus on what is most important now—Jordyn.
Joe, Jess, Christian, Karli, Ashlyn and Jordyn appreciate everyone’s love, support, and prayers.
Remember to follow Jordyn's Journey for updates:
https://www.facebook.com/groups/672849693123496/
If you would like to learn more about HLHS:
https://www.cdc.gov/ncbddd/heartdefects/hlhs.html
Fundraising team: Family and Friends of Jordyn Hope (3)
Anne Tunison
Organizer
Algonquin, IL
Jessica Cervantes
Beneficiary
Joe Cervantes
Team member