Ella Sargent Medical Care

Hi my name is Amanda Sargent. I am fundraising for my 17 year old daughter who suffers from a horrific brain disease and Parkinson’s Dystonia. Please share her story with others and donate if possible. More than anything, please keep her in your prayers. Without the many medical treatments she requires, she would not survive nor have a quality of life. With new evolving gene therapies, a cure is on the horizon. Our goal is to keep her healthy enough to benefit from gene therapy once it becomes available. All of these treatments are not covered by insurance. They are considered off label; therefore, for the past 8 years they have strictly been paid out of pocket. You cannot imagine the debt and expenses that we have incurred. We live in Alabama and haven’t ever received any kind of assistance for Ella. We have been on a waitlist for years for a Medicaid Waiver, which would help pay for numerous items she requires. Unfortunately, we are still waiting. We will continue to do all that is possible to ensure her a quality of life she so deserves. We know these treatments are benefiting Ella in numerous ways. Her still being here with us and smiling is living proof. We have seen some astounding results from hyperbaric treatments, infusion cocktails, chelation, and stem cell therapy. Again, all of which have been paid for out of pocket. She is truly a miracle and has surpassed doctors prognosis. Doctors were skeptical when we told them we were seaking these treatments; however, they are amazed at the results. We know that this is due to God leading us to the many treatments she undergoes. We are now at a point where no more loans can be taken out, and surviving on a teachers salary is tough enough. She has grown and we are looking for purchase a handicap conversion van, and need MANY things to aid transferring her within our home. We are also ready for her next Exosomes treatment.

To know Ella is to love Ella. She is truly a shining light! She was born a completely “normal” baby. She was a typical toddler who loved gymnastics and chasing after her siblings. It wasn’t until she was 3.5 we noticed slight changes in her gait. Within months it was apparent we were in the fight of our life. By age 5, she suffered from extreme panic attacks, and required a walker. It seemed like overnight our active, beautiful baby was struggling to speak or even balance. It was a nightmare. By age 7, she was completely wheelchair bound. We have traveled the world to discover a diagnosis. We left no roads unturned in finding answers and treatments. It wasn’t until 2013, that we received a diagnosis. A diagnosis I wasn’t prepared for. This disease has robbed her of her speech, mobility, and so many other things;however, it has not robbed her of her sweet spirit and vivacious smile. She is quite the character and enjoys life. Smiles ALWAYDs, laughs Often, and LOVES others to no end. We ensure that she enjoys life to the fullest and will do everything in our power to ensure her happiness!

Please help us in preserving and providing her with a life she deserves. We are forever grateful and pray that God uses her story to touch others!!!

Update:

For so long we were constantly doing stem cell, hyperbaric, iv infusions, all of which have proven to keep Ella stable and halt progression. Then Covid hit, things shut down, and we were scared to take her to dr. Offices. We now are at a time where her body is telling us it’s time to get treatments back in motion. So making plans now!!! Thankfully, the treatments are within the Huntsville and Birmingham area. No out of state trips for now.

We also are looking into Tesla med generators. This too is life changing for Parkinson’s and severe neuromuscular diseases. It regenerates and stimulates cell activation thus neural pathways that have been previously blocked are once again viable. Again, something we could share with others in need of life changing treatments! I’m reading a medical publication on this at this time. I’m mesmerized with all the information.

Last, but not least, a new stem cell therapy has become available. We got news two weeks ago that Ella was approved. She is booked for the end of November. It’s called Exosomes treatment. It is a regenerative treatment for many moderate to severe progressive diseases.

As you can imagine, all of this is extremely costly. Much more than what my teaching salary can afford!!! In Alabama, teaching alone doesn’t pay bills much less stem cell therapies! Therefore, we are brainstorming some ideas for fundraisers. We will need to raise about 30k in the next 3-5 months. Seems impossible, but praying and believing God will make a way. Ella also has a gofundme account for donations.