Help a Special girl with JA receive a stroller

"100 shades of blue, too many kinds,

It's called Arthritis. Children get it too.

There's OA and RA, Lupus and Stills

Oh how we hate to take so many pills.

There are joints that swell, and bones that ache. Research and funding are key, for goodness sake! Hope remains to find a cure, for 100 shades of blue."

- Brenda Kleinsasser.

 

Hello, my name is Amanda. I am an Auntie to a Beautiful, incredibly strong 3 and a half year old Girl named Nevaeh. Recently Nevaeh was diagnosed with Juvenile arthritis and Anemia. Juvenile arthritis is an autoimmune disease that effects children, with no known cure. Some cases are mild, other cases more severe.

Quoting the Pediatric Rheumatologist - "She has a very extreme disease"

Nevaeh is 1 to 2 out of 1,000 kids with JA to have such an extreme case.

Nevaehs case, has effected every single joint in her body, and will cause inflammation in her eyes leading to eye disease. Nevaeh has many moments where she is physically unable to move after becoming stiff and sort of "locking".

She has lost weight due to her jaw and lack of appetite from the disease.

She has been prescribed 3 different medications, one including an injection given once weekly.

This has been such a devastating time for our family, and her Mother who ultimately has been so brave during such a scary time.

Our family is doing our best with many new unexpected expenses, such as traveling to see specialist, future appointments every 5 weeks, special foods for nutrition, medications ect.

 

With this go fund me, we are hoping to secure enough money raised to purchase Nevaeh a new stroller suited to her medical needs. Average strollers for infants and toddlers are no longer suiting her as she grows. Nevaehs main form of transportation is walking (stroller) for daycare and grocery shopping. Nevaehs mother suffers from epilepsy, so her driving at this time is not possible. Nevaeh is unable to walk far without causing more pain, stiffness and needing to be carried.

 

We have discovered a stroller called a "BOB Gear Alterrain jogging stroller".

This stroller fits children up to 75 pounds compared to the traditional 30 or 40 pounds.

This would last many years to come as she battles this disease lifelong.

The stroller also features a 5 point harness for safety and shock proof as she is fragile.

It has a deep seat, with extra padding.

The fabric on the stroller has 50+UV protection with a reflectance to bounce the sun off, as 2 of Nevaehs medications cause extreme sensitivity to sunlight.

Stroller also features water resistantce and an extra large canopy to help cover over her.

During this devisating time, her comfort and good quality of life and her future is very important to us, and we would truly appreciate all support.