Help Addison Blau Syndrome

Hello My name is Gina,  This is my beautiful 4 year old daughter Addison  she was 1 years old she broke out with a horrible rash. Every doctor lead us to eczema. After 5 different specialist Addison was diagnosed with Blau Syndrome and Juvenile Rheumatoid Arthritis. Blau Syndrome effects every organ in the body. Making all of Addisons joints lock up and some days not walk much at all.  Over the last 4 years the inflammation has become worse and now moving into her lungs and Fluid is forming around her heart!  Fevers come and go and the pain is so unbearable for her! 
We have been traveling to Gainesville for Insfusions and Addy has received over 10 different types of shots, now and which none of them are working! 
NEW YORK Is Our Last Hope for her. 
One of the top specialists Addison needs to see. The cost to travel and do treatments are almost impossible right now as Addison also has 3 other siblings to be cared for. 
I'm begging each and every one of you to help get Addison to NY to get the help she needs. There is NO cure for Blau Syndrome But NY will make it possible for Addison to Live her life comfortably! 
Anything will help and Everything is so Whole Heartily Appreciated! 
Thank you ❤
Gina and Addison!