
Help Aidan be the best he can be..
Donation protected
This story is about Aidan and hopefully raising funds to assist in our journey. I am a single mother to Aidan, his sister and older brother. Aidan is four years old and has a diagnosis of ASD, SPD, GDD and ADHD. I always joke and say "he's working on his PHD" He is mostly non-verbal, highly sensory seeking and avoiding, extremely repetitive and exhibits extreme aggressive behaviour to me, his sister, carers, children at childcare, anyone he is around and even himself. Not a day goes by without some kind of violent outburst, we are scratched, bitten, hit, kicked or objects thrown at us. Once this behaviour starts it can take anywhere from 20 minutes to an hour to settle him. This happens at home, daycare and the rare times we are out, usually the doctors or therapy. He is 38kg and 120cm tall, this is huge for a 4 year old boy, which means he's impossible to lift and control when he has these meltdowns. Hence leaving the house, and going anywhere with him is impossible, even with a carer. I dread weekends because this means we are bound to the house which drives us both crazy, the odd park visit happens but usually ends in a meltdown. In addition Aidan Has health issues, He has tracheomalacia and bronchi stenosis of the left lung. Which basically means when he gets a cold, he isn't able to cough and clear the mucus which then quickly turns into an upper and lower respiratory infection, making him very sick and sometimes admitted to hospital with pneumonia. He is on antibiotics for about 4-5 months of the year with annual rounds of IV antibiotics. We have received Aidan's NDIS (National Disability Insurance Scheme) package, which covers most of his treatments and assessments needed to address his sensory, speech, and behavioural issues (fingers crossed). If his behaviour is not addressed soon, as he gets older, his aggressive meltdowns towards us and himself will make it difficult or impossible to attend daycare, school or be at home and I will have no choice, but to place him in care. This last resort would destroy our family and I will do anything and everything to prevent this from happening. Currently I am having to pick Aidan up from daycare, as soon as he shows signs of aggression, which is constant, and currently he can only be at daycare for 5 hours, 4 days a week. I have been working casual hours as a carer for aged care, and studying a diploma in Community services, during these days, (hoping to be able to secure a job as soon as he starts school next year) unfortunately due to his behaviour escalating, both are becoming harder to continue. In addition his team of specialist are putting together a 10 week intensive treatment program, including; speech, occupational, and behavioural therapy, to assist in helping Aidan, myself and carers, manage these extreme outbursts or at least reduce them. After the 10 week he will need to continue with speech and maybe even other avenues that we haven't got to yet. (his paediatrician remarked, that he is her most complex client, over her 30 years in the field). I realise that right now, I need to be available to Aidan, everyday, to learn, observe, support, and implement changes to our life outside and inside the home, and daycare, (which he loves attending) in order for Aidan to benefit from this and god willing be able to remain a part of our family, his peers and the community. The regular appointments outside of this, for his medical and psychiatric needs are just as important, and again, I am the only one he has to rely on to be there, in every capacity. I know get to the point. I am raising this money to assist in the day to day living expenses, that a Centrelink (government assistance) carers payment does not cover. The casual work I have been doing, is now impossible, I can't commit to specific hours not knowing when at any given time I might need to run out and pick Aidan up. I also find it extremely difficult to be there for him emotionally, physically and mentally, managing Aidan alone is exhausting, I have no family here and no respite. 2 years ago I removed my family from a domestic violence situation, this too, has had a huge impact on our family, financially, emotionally and psychologically and continues to, even with intervention orders in place, we are harassed and threatened constantly, we have moved 3 times in 2 1/2 years. All the above has also had an impact on my daughter, who now suffers from anxiety, despite this, she is very caring and extremely helpful when it comes Aidan, and rarely complains (even when Aidan attacks her) Unfortunately living with a child with special needs means she misses out on time with me and her friends. She loves playing basketball and netball and has just started high school. I want her to not worry about Aidan, me or our finances, yes good life lessons but she deserves a break. Because Aidan is so big, and has severe meltdowns, runs off, no sense of danger, and dangerous to others and himself, we are getting a special stroller/pram/wheelchair to be able to transport him safely to and from appointments. NDIS will be funding this. However, this will be quite large and heavy, and my current car is not suited for something so big and heavy. A wagon would be ideal, not too much lifting in and out. Also easier to get Aidan in and out. I want to be there in every way to help my son. I believe in my heart that over the next 12 months we will be able to achieve great results, but I need help, I can't work enough to pay the bills, government funding only goes so far. I have tried a loan, but no luck there, so here I am reaching out to family, friends, friends of friends, organisations anyone who could help us raise this money to help us through the next 12 months, and possibly trade my current car in, for something more suitable for Aidans needs. Please, please, help me be there for my son during this important stage of his life, and with as little stress as possible and still have food in the fridge and a roof over our heads. The success of the next 12 months means so much to everyone, Aidan being able to start school, and play a bigger part in his community, and hopefully a reduction in aggressive behaviour, myself to gain employment, and still have the flexibility to be there for Aidan, and financially stable, my daughter to live a life free from heightened anxiety and physical meltdowns (and all that comes with it), and finally a time for our family to heal. I pray this is shared and is guided by god's will, anything, everything counts, I will update on our progress, and his achievements throughout the year. Thank you, for reading our story, and please help Aidan be the best he can be. Aidan's mum, Jodie
Co-organizers (2)
Jodie Hanrahan
Organizer
Mornington, VIC
Helen Turner
Co-organizer