Help Akasha and His Family Through A Chron's Disease Flare

Dear Friends, Family, and Kind Strangers,

My name is Sarah, and I’m a single mother to two amazing children: my 6-year-old son Akasha and my 3-year-old daughter. Akasha is my bright, resilient little boy, battling Crohn’s disease—an autoimmune condition that causes his body to attack itself, leading to internal wounds, bleeding, and debilitating pain.

For the past year, Akasha’s health has been stable, and I've cherished every moment of that reprieve. But just days ago, Akasha began bleeding again, and his abdominal pain is worsening—clear signs that his Crohn’s could be spiraling into another dangerous flare. His previous flares required extended hospital stays of 32 and 17 days, with aggressive treatments needed to save his life and stop the rapid blood loss. I am praying that this flare resolves on its own but based on his symptoms today and the way things have gone in the past, I have to prepare for a another trip to the ER, knowing this could lead to another long and difficult hospitalization.

As a mother, nothing breaks my heart more than seeing my child in pain and feeling powerless to fix it. Asking for help—publicly acknowledging that I don’t have the means to care for my son in the way he desperately needs—has been one of the most difficult things I’ve ever done.

I am building and running a business entirely on my own to provide for my children. I parent full-time, handle school commutes and costs, cook home-cooked meals to meet Akasha’s specialized diet, and try to maintain a stable and loving home—all by myself. The mental, physical, and emotional load is enormous, but I carry it willingly because I love my children with everything I have. Still, moments like this, when his health takes a dangerous turn, remind me that no matter how hard I try, I cannot do this alone.

His previous flares have been extremely difficult, but the timing of this one is coming at a particularly painful time. Just a month ago, my stepfather—who I consider to be my father—died suddenly in a traumatic freak accident. Akasha flew with me to Missouri to attend the funeral, where he experienced the grief and heartache firsthand as he witnessed me and his grandmother mourn and handle the painful aftermath from the accident. I've never lost a family member this close to me and I am admittedly struggling more than most people are aware. With Akasha potentially going into another severe flare, I am doing my best to hold it together.

To make matters worse, I lost health insurance coverage for both myself and Akasha a few months ago because I couldn’t afford it anymore. I’ve been working tirelessly to reinstate it, but right now, we are unprotected, and the thought of facing another mountain of out of pocket medical bills is overwhelming.

Akasha’s condition requires both immediate care and ongoing solutions. Traditional treatments like steroids and chemo-like immunosuppressants can be necessary to stop the bleeding, but they come with brutal side effects and risks to his future health. Additionally, such treatments have averaged around $10,000 per dose. This does not include the hospital stay, and other medical charges. Alternative therapies like Low Dose Naltrexone (LDN) have successfully helped him in the past and are safe for long term management, but they are entirely out of pocket.

I am humbly asking for your help to give Akasha the care he needs and to alleviate some stress for our family during this difficult time. Your generosity will go directly toward:

This isn’t easy for me to ask, but your support could make all the difference. Whether through a donation, sharing our story, or sending words of encouragement, you can help lighten this enormous burden.

As a single mother, I often feel like I have to be everything at once—a provider, caretaker, advocate, and teacher. Right now, I need help from others to give Akasha what he needs most: a chance to heal. Your kindness will bring hope to our family and remind us that we are not alone in this fight.

From the bottom of my heart, thank you for standing with us.

With love and gratitude,

Sarah & Akasha