Help Amey Get Life-Saving Surgery

Hi! My name is Amey and I’m 46 years old. I have been fighting health issues my whole life and while the doctors have consistently found things to ‘fix’, it has never lasted. Turns out, I have been misdiagnosed my whole life.

After the Covid shot triggered dormant issues, life got even harder for my health. I lost a lot of weight (192 down to below 100), I couldn’t work, and was miserable. We’ve tried a feeding tube, multiple, in fact, that my body rejected. I’ve had other surgeries and there still was no success.

I’m blessed to say that we have finally found the issue. Turns out, I was born with MALS, or Median Arcuate Ligament Syndrome. It is very rarely properly diagnosed. In addition, I have Raynaud's, RA, severe esophageal dysmotility, severe gastroparesis, SMAS (Superior Mesenteric Artery Syndrome, the reason I can’t keep food in), and lastly, 2 aneurysms.

I have been waiting for surgery since June, when it was diagnosed, to address the MALS and the aneurysms. After traveling out of state a couple of times, I have finally found one in Kansas. While it is closer, I will still have many medical bills and still be missing out on a paycheck. Due to all of my medical bills, inability to work for a while, and other bills, we have been struggling. I am getting TPN (Total Parenteral Nutrition) next week and will be on that for the rest of my life due to the damage being so long and so severe.I’m looking to raise money for the travel costs, surgery (I’m blessed to have insurance, even if it is crummy), TPN supplies, and my missed wages for recovery.

I’m grateful to have a boss who understands my limitations and allows me to work within them when I am able, but we need every penny to survive month to month. My husband already works 7 days a week and I feel bad that he has to do that, so I push myself further than I should. I’m consistently malnourished, dehydrated, and fatigued. I understand this is a huge ask, but we sincerely appreciate any and all help.