Help Artie live his best life

I have put together this page to help the beautiful Arthur (Artie) - at 2 years of age Artie was diagnosed with a rare genetic condition called KMT2B Related Dystonia.

The condition has led to Artie regressing from a developing 1 year old who was talking a few words and gesturing, movement and playing etc to almost overnight his speech, movement, gestures, eye contact disappearing.

Early intervention will give Artie the chance to live his best life. He has a chance to engage his developmental pathways to stop and hopefully reverse the regression - setting him up for his best future.

Artie is currently being looked after by a Neurological, Metabolic and Genetic team and is doing OT, speech, swimming lessons. He has also just graduated from a 3 week intensive course at NAPA where a huge focus was on simple day to day movements - all movements we take for granted like walking and talking.

Artie’s family want to give him the best chance and as with all parents, want to say yes to every treatment recommended in this critical early stage. Artie has access to NDIS funding, but it’s limited - it supports many Australians and there is only so much to go around.

So I have set up this gofund me page for those that have spare change and would like to help Artie out - your money would go towards the two additional 3 week intensive NAPA courses he has scheduled in August and November and enable him to have additional OT and speech therapy sessions when back in Orange.

Adding to the challenges Artie’s family is facing, is the distance from there home in Orange and the specialists in Sydney. Travelling to Sydney comes at a cost, and with Meg still at school and Kayne working in Orange while Artie and Mum are in Sydney, it’s a juggle. Your spare change would go towards reducing these challenges such as petrol costs and after school care arrangements for Meggy Moo when mums away for extended periods.

Go Team Artie