Help Avery May Silva Fight (EB)

Please join Team Avery May. Avery was born June 1st and, on June 2nd she was transferred to Yale New Haven NICU and, put into an isolation room. When she was born she had blisters on her skin that doctors at Lawrence and Memorial Hospital had never seen. After a day of monitoring her they decided it would be best to transfer her to Yale New Haven Hospital to be observed by their dermatology team. Yale performed biopsies on June 5th and diagnosed Avery with Epidermolysis Bullosa (EB). EB is a rare genetic skin and connective tissue disease that affects 1 out of 20,000 births in the US. There is no treatment or cure. Her skin is extremely fragile which causes blisters and tears from minor friction or trauma. Daily wound care, pain management, and protective bandaging are the only options available for people with EB. She will require multiple and lengthy interventions from medical specialists. As well as frequent trips to UMASS Hospital where they are trained to specifically manage this disease.