Help baby Evangeline Herrera

Hi everyone my name is Evangeline Lyanna Herrera and my birthday was supposed to be June 28,2019,  but not everything went according to plan. 

I was born on May 8, 2019  and weighed 6lbs 11oz. Although that sounds healthy, I suffered from a very critical condition known as Hydrops and was only given a 10% chance to make it through delivery and a 5% chance of going home.

When I was admitted to the NICU, I was put in their critical care suite or “the big room" and was not expected to make it. I was surrounded by doctors and machines and I was fighting for every breath I took. 

After about a week, I started to stabilize but things changed quickly. I was not tolerating food  and had to have exploratory surgery as the doctors weren't sure what was going on.  They found multiple perforations in my intestines and they had been leaking into my abdominal cavity causing the irritation to my liver and swelling. Doctors couldn't repair it and had to give me an ileostomy bag to go to the bathroom and a feeding tube.

I need to go back to surgery in 1 year to get the ileostomy bag removed and my intestine repaired but would have to keep the feeding tube for 5 years.

A few days later, I got to move out of “the big room.” I had stabilized and didn’t need all the big machines anymore. 

 Over the next several weeks, I met my Gastroenterologist. He’s the doctor that will help me grow by helping mommy and daddy figure out what to feed me because I have what’s called “short gut” and it’s very difficult for me to absorb food. 

Due to my short gut, I don’t have enough intestine to absorb hardly any of my food and need IV nutrition to ensure I am getting the calories I need to grow.

But there is always a "but".... the IV nutrition is making my liver angry and doctors have said I might need a liver transplant.

Please help my mommy and daddy manage through these difficult and expensive times.

 Thank you in advance for your kindness and generosity!