Help Baby Finnick Beat Craniosynostosis: Medical

Help Baby Finnick Beat Craniosynostosis: Medical and Travel Expenses

Dear Friends, Family, and Compassionate Strangers,

We reach out to you with heavy hearts and a plea for support for our precious baby Finnick Frey. At only two months old, Finnick was diagnosed with craniosynostosis, a rare condition where the bones in his skull fused together prematurely in utero. This prevents the skull from expanding normally with growth and can cause significant developmental delays. Doctors believe it is due to an underlying genetic disorder we have not yet identified.

As you can imagine, this diagnosis has turned our world upside down. Finnick will be undergoing major surgery known as cranial vault remodeling, at Gillette Children’s Hospital under the care of neurosurgery & craniofacial doctors. The journey ahead is daunting, filled with medical procedures, consultations, and the uncertainty of what lies ahead. Craniosynostosis not only poses physical challenges but also comes with significant financial burdens. From surgeries to specialist appointments, medical bills are piling up faster than we ever anticipated. On top of all the stress of getting baby the care he needs, mom was laid off due to a company-wide reduction right before Christmas and lost her excellent medical benefits for the family. Dad was able to get Finnick on his insurance but the costs are significantly more and proving to be a great burden on a single income.

Every dollar raised will directly contribute to covering medical expenses, travel costs, and accommodations associated with Finnick’s treatment. Your generosity will alleviate the financial strain on our family, allowing us to focus solely on his health and well-being.

Beyond the financial aspect, your support means more than words can express. It's a beacon of hope, a reminder that we are not alone in this fight. We understand that times are tough for everyone, and any contribution, no matter how small, makes a world of difference. If you're unable to donate, please consider sharing our story with your network. Together, we can amplify our reach and bring awareness to craniosynostosis, ensuring that no family faces this battle alone.

With love and gratitude,

Megan, Andrew & Finnick