Help Braylon Braddy experience adventure
Donation protected
Hi, My name is Joanne Braddy. I am the "bonus" mom to Braylon. Braylon is a 23 yr old male with Ceberal Palsy. Over the years he has been diagnosed with seizures and had multiple surgeries on his hips. Most recently we had a baclofen pump put in due to some tone issues in his body. Braylon formerly could walk with the assistance of a walker, but due to a surgery that resulted in his femur ball being removed he no longer can. He has had multiple therapies including one in Poland for Adeli suit therapy. When he was 11 he did hippotherapy with horses that he loved and enjoyed weekly. Braylon has recently been dismissed from MUSC therapy due to there being limited options of ways to continue to treat his tone. We have been told by his care team that it is time to give him experiences and use those to get him to stretch and move his body daily. He is 95% dependent on his caregivers to do things for him.
Over the last few years, Braylon has started getting more vocal and self-advocating his wants extremely loud and clear. With this change in his personality, we have found he is asking for things that are often times difficult for him in a traditional wheelchair. His main desire now is to go for walks on trails, and on the beach. This is something that his traditional powerchair can not do. While they do allow a wheelchair rental at the local beach, we have found that it does not fully support Braylon's low trunk control. This often means that a trip to the beach for him is limited to 30 minutes max due to pain. We have also found that he is directly seeking adventure items like seeing waterfalls or walking in areas not wheelchair-supported. Due to these desires being so high and so vocal for him right now, we have decided to venture into finding him a chair that will allow him to have the adventures he desires safely in a chair that will work for him.
The chair we have found is the Extreme Motus X3. The parents (Randy, Tonya, Steve, and Myself) have all shared this chair amongst us in an effort to decide if this would successfully work for several years. This year we have decided to fully pursue giving Braylon the freedom and adventure he is desiring.
These are the same adventures that a normal walking person can enjoy and love but limit those who rely on the wheelchair. He is ready to explore the world and we are ready to help him do that.
Below are some videos of others with the chair, we are seeking to give this to Braylon and allow him the ultimate freedom of enjoying everything as others do. If you have any questions please feel free to reach out. We know this is a large amount to fundraise and we are working on other ideas to make it happen.
Organizer
Joanne Braddy
Organizer
Moncks Corner, SC