Help Cecilia get ALS treatment, please!

Hi, my name is Helene and I'm fundraising for life-saving treatment for Cecilia, a 38-year-old woman, wife and mum of 2 children aged 9 and 6, with ALS. Please read Cecilia's story in her own words.

This is me

My name is Cecilia and I am from Malmö, the 3rd largest city of Sweden. I was born in 1984 and I am happily married to my teenage love. We have 2 children, aged 9 and 6, a cat and a dog.

ALS hit me

In May 2022, the doctors diagnosed me with the incurable and terminal disease ALS. Together with my husband, I have gone through every phase of chock, panic, anger and sorrow. My fear is bottomless and my sorrow abysmal when I think of my 2 children who will lose their mother perhaps already while growing up.

Swedish National Health Care and neurologists offer no hope to an ALS patient. To them, there is nothing to do. They gave me death sentence and left me to my destiny.

I feel my body slowly degenerating. How muscles in my legs, arms, torso, neck and tongue weaken. I was a strong and healthy 38-year-old. During the past 12 months, I feel my body has aged 20 years.

I found hope

Against all odds, I found hope! We discovered BodyScience in Miami, Florida. They tailor a health care regime specifically for each patient. Their goal is to find the error in me, rebuild me, make me stronger, treat me and ... turn around whatever is happening inside of me.

BodyScience offers a rearch-based treatment which is not yet available in Sweden. Thoroughly tested and individualised care that every ALS patient ought to have access to. But unfortunately, this treatment is very expensive.

My family's economy is strained from this and I wish that amount of added stress for no-one - especially not my husband who organises everything.

Help me on my life's journey

During 2023, I am to visit BodyScience to be treated 4-6 times with e.g. Supportive Oligonucleotide Therapy (SOT) and Exosomes Therapy. Each week at BodyScience costs at least 7500 USD.

Please help me on my life's journey towards getting well and beat this monster that MND is - motor neuron disease.

THANK YOU!