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Help Dax beat his Brain tumour

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This is our son, Dax. He is 2 years old and has recently been diagnosed with an Acoustic Neuroma/Vestibular Schwannoma. This is a rare type of tumour that is normally seen in adults. The tumor is thankfully benign. It grows on the nerves from the inner ear canal leading into the brain.  This was first noticed back in early March when we noticed he was no longer able to move his left side of his face, close his left eye and also a facial droop on the left side.  This was first diagnosed as Bells Palsy. Unfortunately, in late March Dax's condition got worse with persistent vomiting, he could no longer walk in a straight line, kept falling over and losing his balance when unaided. He was admitted to hospital where they carried out 2 separate MRI scans under general anaesthesia, which lead to the tumour diagnosis. Dax could lose his hearing at any time while the tumour is in place and if not removed he will be left with the facial palsy for life. He is also at risk of damage to his eye or even loss of sight as he is no longer able to close his left eye. The NHS staff in Scotland have done such an amazing job, especially in the current COVID-19 situation but they don't have a large enough experience of operating on this tumour in children or to rehabilitate his facial nerve and facial muscles to restore his smile and preserve his hearing. They have suggested to watch and wait, using MRI to monitor the tumour. This could cause Dax long term issues.  After joining a very helpful support group we were recommended a specific Neurosurgeon multiple times. Dr Friedman at UC San Diego Health has this well needed experience and knowledge of these kind of tumours. He carries out these procedures in adults but also in young children too. Using email and Zoom we sought his opinion, which is to remove the tumour. He has agreed to do the surgery and wants to carry this out as soon as we are allowed to travel. We hope to cover as much of the cost ourselves but as you can imagine the cost is great for this sort of operation and the after care that is required. So please, if you are able to help in any way we cannot thank you enough. If you are unable to financially help, just sharing this will help us so much. Thank you all for taking the time to read this and for all of your help. It is so greatly appreciated  Jonny, Devon and of course Dax

Donations 

  • Emma Hawke
    • £5
    • 5 yrs

Fundraising team (2)

Jonny Peek
Organizer
Scotland
Devon Peek
Team member

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