Help Derek w stuff insurance doesnt cover

Hi I’m Ember and my son is Derek. He has a very rare genetic disorder called HPE. I have a TikTok that I try and raise awareness with as well as just share his story and answer questions about his condition and well him. Many people asked about a go fund me and asked me to create one so here it is. I hope people understand I wasn’t asking for money but am very grateful to those of you who are wanting to help out. We do run low on money at times and there is some stuff insurance doesn’t cover so again, thank you all very much. The goal number is just a number as well, I don’t really have a goal in mind I just needed a number to put in.