Help Eve & family attend Convention for Williams

My daughter, Eve, has a rare genetic condition called William's Syndrome. Evelyn came into our lives on March 26, 2021, and our lives and family was changed forever. Evelyn's the embodiment of love, joy, and goodness. And just like other children with William's she will have unique challenges presented to her throughout her life. Eve will always face health challenges and she will be exposed to a lot of pain and suffering (physically and mentally). And as her family we are devoted to relieving any challenges she will face that is in our control. To do this we have to be educated, prepared, proactive, thoughtful, and connected.

Initially caring for Eve didn't require much financial investment however as she grows, as the medical interventions continue to build on top of each other, and as the level of resources and therapies are increased to support her developmental needs, we are intimately aware of our financial limitations. We are doing everything we can to increase our financial position, because we know what the future may look like for Eve. But we continue to struggle with the needs she has now and the needs she will have later.

The Williams Syndrome Association holds conventions every other year, and we are seeking support so our family can attend. The convention is in July of 2024 in Phoenix AZ. Attending the national William's Syndrome Convention this summer is a small piece to our educational journey as this will be a forever commitment to support Eve. But having this opportunity will give us such a strong foundation to continue building from years to come. It will also be so amazing to meet and share in the lives and experiences of other William's families for an entire week. Living in Vermont has not offered up a lot of chances to meet other children with this syndrome as it is so rare.

Helping our family care for Eve is a gift we could never repay and also never do alone, and we are so thankful for any support given to make this part a little easier. Any additional funds beyond what is needed for the convention will be used for additional therapies we have for Eve that are not covered by insurance.