Help fund an appropriate wheelchair for Wesley

Hi, My name is Sam, I’m owner and creator at Luna Rose Design. Self employed, chronic illness warrior, mama to 3 little people and carer for my partner Wesley.

Thank you so much for taking time to read our story and how you can help our family.

Following a routine unrelated operation in April 2023 Wesley began to suffer from severe pain and a decline in physical function. After months back and forward to doctors and hospital at this point going from able bodied, actively persuing a career as an urgent care assistant with ER Systems Global to walking with crutches, he was diagnosed with Fibromyalgia but things weren’t adding up. His symptoms kept getting worse and worse, including neurological symptoms that weren’t related to Fibromyalgia. October 2023 we purchased a basic self propelled wheelchair as standing and walking was becoming more and more difficult.

April 2024 after more tests and consultations, We were finally given an answer and Wesley was diagnosed with Functional Neurological Disorder (FND). FND affects the functioning of the nervous system and how the body and brain send and/or relieves signals. FND can affect a wide variety of neurological symptoms, such as limb weakness, speech, seizures and many more.

If you’ve got this far you are a star.

Where we are at now.

Wesley is now unable to use a self propelled chair himself due to muscle strength and issues in his shoulders.

The NHS are unwilling to help with a suitable powerchair as we are not living in an accessible property, we are currently waiting on an adapted property.

But this means Wesley is dependent on someone else always being there to push him in the self propelled chair.

We got given a very old heavy powerchair a few months ago, which has been amazing for Wesley to be able to gain some independence but this chair really isn’t suitable for his needs, also puts alot of pressure on myself to take apart and load an almost 80KG chair in and out of the car, which In and of itself is a difficult task add In that I have chronic illnesses myself which makes many normal tasks difficult to do without pain and may cause an illness flare up if I over do things, which can put me on bed rest for a day or so at times.

After months of research, customer reviews, talking to other wheelchair users and test driving chairs, we have decided on a chair that would meet Wesley’s needs and be light enough to fold and lift into and out of the car.

The chair we are hoping to fund is the Quickie Q50 R Carbon Folding Powerchair.

Any funds over target will be used to provide additional accessibility aids which will give Wesley more independence.

How can you help?

Would you be able to donate towards a suitable chair for Wesley?

Help share Wesley’s story to reach as many as we can to hopefully give Wes some independence back to his life?