Help Gabby live pain free

After being in physical therapy since 6 months old, Gabby was diagnosed with Chiari Malformation at 2 years old and had her first brain surgery. She had her second brain surgery at 10. Since then she has been in pain every single day. We have been to doctor after doctor for the last 5 years trying to find her some pain relief. We’ve gotten several diagnoses. She has tried multiple forms of physical therapies and medicines to ease her pain, none of which has worked at all. Through this all, she has done her best to go to school, be with friends and play softball, which she loves. She suffers through the pain just to be able to do what a typical teenager does. Last week we had an appointment at Children’s Hospital of Philadelphia(CHOP), where we finally got some answers that make sense. Gabby was diagnosed with Amplified Musculoskeletal Pain Syndrome(AMPS). Basically, the nerves are sending out extremely painful signals throughout her body. This causes problems with the blood vessels and a build up of lactic acid in her muscles. This is why typical PT has not worked for her. We finally have some hope for her to live a life without pain. CHOP has the best treatment facility in the country. She will have to attend a strict hospital based program of intensive physical and occupational therapy. This will help retrain the nerves so they will not send out the pain signals. It is believed to be caused by illness or injury. The doctors believe Gabby’s was triggered by her second brain surgery. I didn’t realize just how severe the pain was until we met with these doctors and they spent hours with her going over everything. This program is our only hope. However it will require 3-4 weeks in the day hospital program in Philadelphia. The 2 1/2 hour commute each way would be too much everyday, so we would need to stay in Philly for the duration. Luckily, I don’t have to worry about losing pay because my company provides paid care giver leave so I can be with her. However, staying in a hotel for that long is not something we can afford. If we can’t stay then she can not go to the program. She really needs this program so she doesn’t have to live the rest of her life in such pain. If there is anyway you can help at all we would be very grateful. Thank you for reading and please share!