Help get Conor to America

Earlier this year Conor was diagnosed with a rare genetic disease called APS-1.

It's thought there is less than 1000 cases of APS-1 worldwide. We are raising money to get Conor to the NIH in America to see Dr Lionkas and his team who are world leading in studying APS-1, they would evaluate him and be a part of his ongoing care.

APS-1 has many manifestations which start as early as 3 and can develop as late as 60. Conor has autoimmune hepatitis, hypoparathyroidism (which is also rare) and small intestinal bacterial overgrowth.

Conor copes incredibly well but management of his condition can be exceptional difficult as his calcium levels fluctuate greatly. We have the opportunity to meet the world leading expert on his condition and this would be such an opportunity for all of us and to help get Conor the quality of life he deserves.