Help Gunes fight TYPE 1 Spinal Muscular Atrophy

My name is Senol Kahraman and I reside 
here in the states. I am both a volunteer
and family friend of baby Gunes’s parents.With the permission from Zekeriya and
Nesibe Karavil (Gunes’s parents) to both
organize and withdraw- I started 
this aid campaign to help with the
Zolgensma treatment cost that Gunes
desperately needs. If successful, the funds will be deposited into the escrow account 
at the Boston Children’s Hospital. 

Baby Gunes is currently 10 months old and fighting for her life against Type 1 Spinal Muscular Atrophy (SMA). Type 1 is the most severe form of SMA. Children with type 1 have limited movement, cannot sit without support, and have trouble breathing, feeding and swallowing.

Gunes was only 5 months old when her diagnoses was confirmed. Her current weight is 15 pounds and MUST be treated before she reaches 28 pounds.

In order for baby Gunes to have any future, She has to receive a genetic therapy called Zolgensma. Zolgensma costs $ 2.1 million, with additional expenses the total amount reaches more than $ 2.4 million.

Zolgensma approval only covers children under 2 years and it’s best to get this treatment as early as possible. We are fighting against the clock. She must receive her treatment in the United States as it is not offered in her home country. The Boston Children’s Hospital has accepted to treat Gunes if her family can cover the exorbitant cost.

We are fighting to raise the funds necessary for this treatment as her family is not financially capable to do so. Please help give Gunes a fighting change against this unimaginable illness.

Your donations will be greatly appreciated. This campaign is dedicated exclusively to baby Gunes.