Help jess have a future

Jess needs our help, while the government has put stops on a life saving drug, her parents have remortgaged their house of $100000 and they can afford to pay for Jess's treatment for another 5 months, let's help raise some money to help give jess and her family some extra months of treatment while we keep petitioning to get trikafta on the PBS.

Please help jess and other CF fighters and sign this petition
https://www.aph.gov.au/e-petitions/petition/EN3915

Jess deserves a future where her health doesn't come at a cost! 

 

Below is a bit about jess

 

EIGHTY THREE

That’s the percentage. My percentage. My lung function today.

 

FIFTY NINE

That was the percentage. My percentage. My lung four weeks ago.

 

TWENTY FOUR

That’s the difference in lung function after four weeks on a new drug.

 

FIFTEEN

That’s how many years it’s been since I had a percentage above 80.

 

SIX

That’s how many months they gave me when I first got Cepacia. Not only do I have CF, I have this antibiotic resistant bug that never F**Ks off.

They told mum and dad it was going to kill me.

 

THREE

That’s how many hospital admissions I was having a year.

 

NINE

That’s how many years I’ve been fighting, with everything I have, to stay well, stay fit and stay alive since that diagnoses.

 

TWENTY SEVEN

That’s how many years I’ve beat this disease.

 

TWENTY ONE THOUSAND, THREE HUNDRED AND SEVENTY FIVE

That’s how much this medication costs each month.

This is the price on my life. This what the government and drug company charge me so I can stay alive.

 

TRIKAFTA

That’s the drug changing my life.

It’s making me a new person.

I can run and walk without coughing, puffing or vomiting on the side walk.

I can breathe. I can function. I can sleep.

That is the drug the Government don’t want to pay for.

That’s the drug Vertex have put a $256,500 per year price tag on.

 

INFINITY

That’s the fight I have. I will continue to get up every day and bust my arse so I can live the life I want and truely deserve.