Help Jocelyn fight Aplastic anemia PNH with a cure
Donation protected
This is Jocelyn!
If you know her personally, then you know she is the most kindhearted, energetic, fun loving, caring and with the biggest heart for animals type of person you will meet. Jocelyn naturally a caring person became a mother baby/pediatric nurse. She is a daughter, a sister, a niece, a friend, and a wonderful wife. Her family and friends love her to the end.
Only at 30 years old, Jocelyn was given a life-threatening bone marrow failure diagnosis. Aplastic anemia and Paroxysmal Nocturnal Hemoglobinuria (PNH). This is only one in a million diagnosis and no it is not genetic it is a mutation she was exposed to something viral, antibiotics or something environmental that made her immune system go crazy and attack her bone marrow.
Aplastic anemia is not your typical anemias. This Aplastic anemia, a beast of a disease, resembles Leukemia. Its rare and the bone marrow stops producing red blood cells, platelets, and white blood cells- everything that someone needs to live life . The small amount of red blood cells that her body does produce is destroyed by PNH.
https://www.aamds.org/diseases/aplastic-anemia
https://www.aamds.org/diseases/pnh
Jocelyn illness was improving but has recently taken a turn for the worse. Her biopsy showed it, now Jocelyn needs labs twice a week and blood and platelets every week. Since her body is not responding to other treatments, she will undergo a bone marrow stem cell transplant.
After an exceptionally long search, Bethematch found two potential full matches but pulled out last minute. Her sister, only a 50% match, is her only hope now, she will have a haploid (half a match) transplant with John Hopkins protocol teamed up with her BMT team at Ochsner. Transplant day is June 1st. Prior to the transplant, Jocelyn will have to harvest embryos with her husband to give her and her husband a chance to become parents one day. She will endure harsh chemo/ radiation conditioning a week before the transplant to kill everything (yes, she will lose her hair also) to prepare her body for the new bone marrow. She will be at the hospital for weeks, or possibly months.
Once home she will need a caregiver which will be her husband and her mother alternating care once she is home. While medical insurance does cover some medical expenses, it will not cover everything. They will go down to one income if that.
If possible, we ask to consider donating whatever you can, no matter how small, for medical bill, expense for medication, labs, doctor visits, fertility, embryo storage and little things they will need at the household to take care of Jocelyn.
If your unable to donate we ask for prayers. Also, please consider donating blood or registering at be the match https://bethematch.org/ to find out if your possibly a match to someone. Not only you can possibly help save a life but their family also who is struggling to suvive with a bone marrow failure disease/cancer.
If you know her personally, then you know she is the most kindhearted, energetic, fun loving, caring and with the biggest heart for animals type of person you will meet. Jocelyn naturally a caring person became a mother baby/pediatric nurse. She is a daughter, a sister, a niece, a friend, and a wonderful wife. Her family and friends love her to the end.
Only at 30 years old, Jocelyn was given a life-threatening bone marrow failure diagnosis. Aplastic anemia and Paroxysmal Nocturnal Hemoglobinuria (PNH). This is only one in a million diagnosis and no it is not genetic it is a mutation she was exposed to something viral, antibiotics or something environmental that made her immune system go crazy and attack her bone marrow.
Aplastic anemia is not your typical anemias. This Aplastic anemia, a beast of a disease, resembles Leukemia. Its rare and the bone marrow stops producing red blood cells, platelets, and white blood cells- everything that someone needs to live life . The small amount of red blood cells that her body does produce is destroyed by PNH.
https://www.aamds.org/diseases/aplastic-anemia
https://www.aamds.org/diseases/pnh
Jocelyn illness was improving but has recently taken a turn for the worse. Her biopsy showed it, now Jocelyn needs labs twice a week and blood and platelets every week. Since her body is not responding to other treatments, she will undergo a bone marrow stem cell transplant.
After an exceptionally long search, Bethematch found two potential full matches but pulled out last minute. Her sister, only a 50% match, is her only hope now, she will have a haploid (half a match) transplant with John Hopkins protocol teamed up with her BMT team at Ochsner. Transplant day is June 1st. Prior to the transplant, Jocelyn will have to harvest embryos with her husband to give her and her husband a chance to become parents one day. She will endure harsh chemo/ radiation conditioning a week before the transplant to kill everything (yes, she will lose her hair also) to prepare her body for the new bone marrow. She will be at the hospital for weeks, or possibly months.
Once home she will need a caregiver which will be her husband and her mother alternating care once she is home. While medical insurance does cover some medical expenses, it will not cover everything. They will go down to one income if that.
If possible, we ask to consider donating whatever you can, no matter how small, for medical bill, expense for medication, labs, doctor visits, fertility, embryo storage and little things they will need at the household to take care of Jocelyn.
If your unable to donate we ask for prayers. Also, please consider donating blood or registering at be the match https://bethematch.org/ to find out if your possibly a match to someone. Not only you can possibly help save a life but their family also who is struggling to suvive with a bone marrow failure disease/cancer.
Organizer
Family and close Friends for Jocelyn
Organizer
River Ridge, LA