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Help Jon Hooton Fight ALS

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On behalf of the Hooton family, they kindly ask that you join them in helping Jon in his fight against ALS (Lou Gehrig's Disease).  

* Jon and the Hooton Family would like to thank all the family and friends for their generous donations. The family is overwhelmed with all the love and support we are getting!  #FightALS and #Fight4Jon 

My nephew Jon was diagnosed in July 2021 with ALS.  Jon is 31 years young with so much in life ahead of him. He was born in San Diego, later raised in Oregon, and then settled in Elk Grove, CA. He graduated in 2009 from Elk Grove High School where he was on the basketball and tennis teams.  He graduated college in May of 2017 from Cal State Channel Islands with a degree in Sociology and Psychology. He works as a Student Affairs Coordinator at a local Sacramento college.  He is the son of Ron and Linda Hooton, and younger brother to Lindsay Hooton Cosgaya and Nicole Hooton.   Jon has a passion for life, and has a big heart. He loves to travel, and values the bonds with his friends and family. 


After a series of Neurological consultations,  diagnostic tests, MRIs, and a reconfirming second opinion, Jon is now on medications in hopes to slow the progression of ALS.   His speech is severely limited,  his right arm trembles, and has almost no grip strength in his right hand. He hopes to get into one of the ALS clinical trials.  

Amyotrophic lateral sclerosis, or ALS, is a progressive nervous system disease that affects nerve cells in the brain and spinal cord, causing loss of muscle control. ALS is also known as Lou Gehrig's disease. ALS often begins with muscle twitching and weakness in a limb, or slurred speech. ALS affects control of the muscles needed to move, speak, eat and breathe. As the disease advances and nerve cells are destroyed, your muscles get weaker. This eventually affects chewing, swallowing, speaking and breathing. There is no cure for this fatal disease. It is estimated that ALS is responsible for nearly two deaths per hundred thousand population annually. A little over 5,000 people in the U.S. are diagnosed with ALS each year. It is estimated that as many as 30,000 Americans may have the disease at any given time. The life expectancy of an ALS patient averages 2 to 5 years from the time of diagnosis. Approximately 80% of cases begin between the ages of 40 - 70. The financial cost to families of persons with ALS is exceedingly high. It is estimated that in the advanced stages, care can cost an average of $200,000 a year. Patients' and relatives' entire savings are quickly depleted because of the extraordinary cost involved in the care of ALS patients.

From your generous donation, it will help Jon, and his family offset the out of pocket expenses needed for the treatment and care related to this deadly disease.

On behalf of the Hooton Family, THANK YOU for your love, support, prayers, and donation.

Parents:  Ron & Linda Hooton

Sisters:    Lindsay Hooton Cosgaya, Nicole Hooton

To understand ALS: https://youtu.be/aDpN-6EAd3k

To learn more about ALS: https://www.als.org

 

 

Donations 

  • Uyen Le
    • $100
    • 2 yrs
  • Jana Anslinger
    • $50
    • 3 yrs
  • Anonymous
    • $20
    • 3 yrs
  • Anonymous
    • $50
    • 3 yrs
  • Barrett Vonderau
    • $25
    • 3 yrs

Organizer and beneficiary

Paula Schiesser
Organizer
Sacramento, CA
Jonathan Hooton
Beneficiary

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