Help Julie and Emma #JBattensDisease

Julie is a Great Mom, doing the best she can to take care of Emma. She has been doing it on her own, but it hasn't been easy. Emma's father has past, and Julie is the only one that can care for her.

Emma has had many medical issues of the last 5 years, and will need medical support for the rest of her beautiful life. Emma was recently diagnosed with Juvenile Batten Disease.

Batten disease is a rare inherited neurological condition. It affects compartments in the cell called lysosomes, which are responsible for the degradation of substances that are no longer needed.

Over time, patients with Batten disease experience sight loss, seizures, and progressive motor and cognitive decline. Eventually, patients develop dementia, become bedridden, and require 24-hour care.

Any mother would be heartbroken with this, and Julie is. However, she wants her daughter to have as many good years as possible which will take a lot of medical treatments as there is no cure for this. Please help if you can.