Help Kailani go to 11q Medical Conference
Donation protected
Greetings! I'll be honest, I'm not fond of asking for help. Just another way parenting has humbled me, beyond what I could have ever imagined! I fear this one won't be possible, without the help of my friends, family, extended community, and beyond.
As many of you know, my daughter has Jacobsen Syndrome, a rare genetic condition also known as 11q.
The unfathomable rarity of my child's condition, is evident by the mere handful of doctors in the world, who specialize in 11q treatment and research. These doctors are responsible for life saving protocols, made possible by the 11q Research & Resource Group and Conferences.
Every 2 years, 11q families and specialists, from all over the world, gather in San Diego for the 11q Research & Resource Group Medical Conference. Throughout the week, 11q doctors offer consultations, review medical records, make recommendations, and so on. Also, there's amazing lectures, groundbreaking research, breakout sessions, experiential workshops, and many incredible opportunities for community connection - sibling groups, parents/adults night out, youth and family activities.
Clearly the trip is invaluable, but it's a costly week! The peak Summer airfare and hotel rates always skyrocket, and there's added costs of inflation too. Plus, shutting down the shop, puts all of Dean's production and Forest Life Creation's sales, on pause. Along with most self-employed businesses, we were recovering from Covid losses, when inflation knocked down our sales, once again. When schools reopened, Joy returned to work in special education, but now on unpaid family medical leave, and caring for her own health challenges.
By moving forward with making reservations, we have been able to create an approximate budget. So here's a snapshot of our family's estimated expenses:
• $1530. Airfare
• $1700. Hotel
• $390. Car
• $350. Meals
TOTAL = $3970.
We humbly ask, if you're able, would you be willing to contribute to our 11q Medical Fund? Keep in mind, any amount helps! Partnering together with us, by donating and sharing this fundraiser with your people, will have a positive impact on our entire family's wellbeing - most importantly on Kailani's future. Thank you so much for caring about us, for taking the time to read this, and for considering to help our family!
In partnership and gratitude
Dean, Joy, Makai & Kailani
As many of you know, my daughter has Jacobsen Syndrome, a rare genetic condition also known as 11q.
The unfathomable rarity of my child's condition, is evident by the mere handful of doctors in the world, who specialize in 11q treatment and research. These doctors are responsible for life saving protocols, made possible by the 11q Research & Resource Group and Conferences.
Every 2 years, 11q families and specialists, from all over the world, gather in San Diego for the 11q Research & Resource Group Medical Conference. Throughout the week, 11q doctors offer consultations, review medical records, make recommendations, and so on. Also, there's amazing lectures, groundbreaking research, breakout sessions, experiential workshops, and many incredible opportunities for community connection - sibling groups, parents/adults night out, youth and family activities.
Clearly the trip is invaluable, but it's a costly week! The peak Summer airfare and hotel rates always skyrocket, and there's added costs of inflation too. Plus, shutting down the shop, puts all of Dean's production and Forest Life Creation's sales, on pause. Along with most self-employed businesses, we were recovering from Covid losses, when inflation knocked down our sales, once again. When schools reopened, Joy returned to work in special education, but now on unpaid family medical leave, and caring for her own health challenges.
By moving forward with making reservations, we have been able to create an approximate budget. So here's a snapshot of our family's estimated expenses:
• $1530. Airfare
• $1700. Hotel
• $390. Car
• $350. Meals
TOTAL = $3970.
We humbly ask, if you're able, would you be willing to contribute to our 11q Medical Fund? Keep in mind, any amount helps! Partnering together with us, by donating and sharing this fundraiser with your people, will have a positive impact on our entire family's wellbeing - most importantly on Kailani's future. Thank you so much for caring about us, for taking the time to read this, and for considering to help our family!
In partnership and gratitude
Dean, Joy, Makai & Kailani
Organizer
D. Robertson
Organizer
Lynnwood, WA