HELP KEEP ALS WORLDWIDE ALIVE

In 2002, our son Benjamin Byer was diagnosed with ALS (Lou Gehrig's Disease). From that moment on, we searched for treatments, uncovered research and supported the many other patients who asked for our help. In 2008, our son died, at age 37. In Ben’s memory, we created ALS Worldwide as a beacon of hope for ALS patients and their families. Today, the ALS Worldwide website is utilized by thousands of patients each month. Hundreds email or phone us weekly, searching for compassion, information, solace and ways to cope with the onslaught of devastating symptoms. We are always there to answer questions, provide support, and navigate the desert that is ALS.

Recently we learned that the fifteen-year-old website needs a complete overhaul because, at any time, the system might fail. We are also beyond retirement, having recently celebrated our 80th birthdays. Therefore, we need to find ways to fund ALS Worldwide for the duration so that information can continue to be provided long after we are both gone. Although we have a plan for staff to keep ALS Worldwide alive and well, we need funds for that as well.

Our goal is to raise $100,000. Some of those funds will be used for updating the ALS Worldwide website. The remainder is to be used as an endowment fund so the ALS Worldwide Organization can live until there is a cure.

With your help, ALS Worldwide can become financially independent and always available to the ALS/MND community.

Here is more information about ALS Worldwide. We are a nonprofit organization that provides free guidance and support to thousands of people living with ALS and their loved ones in the USA and more than 150 countries via videoconference, email, online resources and telephone. We seek to help people live better and longer with ALS.