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Help Kristin with ALS treatment and expenses

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We are writing to ask for your help. "Imagine you are diagnosed with a disease that will inevitably take everything away from you. It almost seemed unimaginable to me until I was diagnosed with ALS at the age of 37."
-Kristin Goetz

 This disease is called Amyotrophic Lateral Sclerosis (ALS), most people know it as “Lou Gehrig’s Disease.”ALS is a progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord, gradually leading to muscle weakness, paralysis, and ultimately, a shortened life expectancy. Kristen has experience firsthand just how devastating this disease can be. ALS robs a person of their Independence and ability to move, speak, swallow and eventually breathe, while the mind stays fully in tact. The average lifespan of an ALS patient is 2 to 5 years from diagnosis.Despite the challenges she faces daily, Kristin remains an inspiration to all who know her, displaying unwavering strength, resilience, and an unwavering spirit.

 How You Can Help:
We believe that no one should face such a challenging journey alone. By contributing to this GoFundMe campaign, you can make a significant impact on Kristin's life. Your generous donations will help cover the following expenses: assisting Kristen's effort to receive alternative treatment in Miami Florida at Body Science . Donations will also help with other disease related expenses such as handicap equipment and home modification necessary to create a safer environment allowing mobility devices to be used safely and effectively. .

 We are throwing a local fundraising event July 30th at Great Lakes Ice Cream Station in West Seneca New York to honor the memory of Bob Metzger -father of Tammy who owns Great lakes ice cream station, who tragically passed away from ALS as well as bringing awareness and support towards Kristin's fight against this deadly disease..

We have set up this GoFundMe campaign to rally support and provide another avenue for people to donate who cannot attend the fundraiser on July 30 but would like to show their support. It is reported that the average out-of-pocket cost for an ALS patient per year not covered by any insurance range between $30,000 up to $100,000 annually. These expenses can add up quickly and become almost impossible for ALS patients to be able to afford any alternative treatments that are not covered by insurance.
After this ice cream fundraiser we decided to keep says fundraiser open to continue to help Kristen with disease related expenses. There are many things that cost a lot of money when it comes to this disease oh including home modification transportation cost do to a handicap vehicle etc.. Thanks again for all of the help and love.
Thank you so much for your help and support in this fight against ALS.
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Donations 

  • Patricia Maher
    • $50
    • 3 mos
  • Sally Petrea
    • $25
    • 3 mos
  • Anonymous
    • $5
    • 3 mos
  • Bryan Ortiz Lenis
    • $10
    • 4 mos
  • Keith Grabowski
    • $100
    • 4 mos
Donate

Fundraising team: Team fundraiser (3)

Kristin Goetz
Organizer
Buffalo, NY
Gary Duncan
Beneficiary
Carolyn Vario
Team member
Tammy Metzger
Team member

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