Help Larsen Renfrow and his family

Larsen Kade Renfrow was diagnosed with aplastic anemia and an autoimmune disease at Vanderbilt Children's Hospital after weeks of undergoing vigorous testing. 

On March 20, 21, my daughter, Franziska and her husband, Chris, woke up and noticed that their two year old son, Larsen Kade Renfrow had a yellow tint to his eyes and skin (jaundice) and took him to the doctor.  The doctor did a blood draw and informed Franziska that she needed to get Larsen to immediately Vanderbilt Children’s Hospital immediately. His bilirubin levels were extremely high and his Red Blood Cells, White Blood Cells, and Platelet count were almost nonexistent. They have run test after test, 2 liver biopsy’s and a bone marrow biopsy and have said it is a very, very rare autoimmune disease. He has been give the diagnosis of HLH, Hemophohistiocytosis lymphohistiocytosis. It’s known as a primary immunodeficiency. The body’s immune system fights off infections and anything else it sees as foreign invaders to the body. In HLH , the body makes too many immune cells. They have started him on Jakafi, which is a medication that will hopefully work but we aren’t sure if it will yet. His RBC, WBC and platelets continue to fall and his bilirubin rise. Larsen has 2 older brother’s, Talon and Lachlan and was finally able to see them after 2 weeks. Larsen loves to play with dinosaurs and Godzilla, but loves to play and chase his brothers.