Help Lexy Overcome Neck Injury, Scoliosis & Lordosis
Donation protected
(My spine looks relatively the same as 2 years ago.)
First, I just want to say, if you choose to donate, you have no idea how much it means to me. Thank you so much.
My neck and the rest of my spine has remained relatively untreated throughout my childhood, progressively getting worse and worse over time, until I took it upon myself to start trying to pay for it as an adult in 2021. For now, I must choose between my health and getting my own place. I can't have both. I choose my health. I appreciate all the support I can get.
My Backstory: I unfortunately went through a lot of childhood trauma and physical abuse from my mom, and emotional and verbal abuse from my mom's siblings, and my mom's mom... a lot of punches, kicks and stomps to my privates, my neck, my back, my head, and my spine in general, strangling me, picking me up by my neck, throwing me by my hair, dragging me by my hair, banging my head on sharp corners of furniture, malnourishment, spitting in my face, calling me worthless, looking at me with disgust since I was a very young child, just very unloved in general while I watched my cousins on my mom's side receive love from my mom and my mom's siblings, and more.
My mom and her siblings did a lot of gaslighting as well, saying that I'm just a crazy person who makes this all up and who needs mental help. My mom's side of the family never answered my calls for years and they don't call me, not even for my birthday, but they answer my mom's calls and/or they call my mom and request to speak to my siblings. I finally gave up on calling them 12 years ago. I guess it's because they love my main abuser and I spoke up on what was going on, so they don't like me. This is why asking my mom's side of the family for help and getting their support is just out of the question. As for my dad's side, I'm not sure what is true and what isn't but my dad said my mom took everything from him, that my mom's mom stole from him, he said he was dumb enough to put properties in both his and my mom's name in order for his success to be her success as well, but she went and signed it all over to her mom and siblings, and this was all after putting a roof over their heads, paying their way through school, only for them to be abusing me without his knowledge. He said that as a result of all this, he and his side of the family are now unable to financially help me. That they want to but they just can't. And the side that has money now due to all his sacrifices, would never want to help me.
When I was little, I cried during severe migraines and I no longer had the ability to straighten my head since I was 6 years old. My mom's mom complained of a migraine once when I was 6 years old, and I asked her what that was and she explained it to me and I was like "oh I get those" but she told me that I'm a liar and that children don't get migraines. My migraines got progressively worse over time after this. I was being yelled at for not straightening my head during haircuts or school photos, family photos and things like that, and when I said I literally couldn't, everybody rolled their eyes as if I was intentionally being difficult again. Nothing I said was ever taken seriously.
My severe back pain started since I was 10 with a huge knot the size of a round brush just under my right shoulder blade. It was on the right side only, so it caused the right side of my back to be raised a lot more than the left side. I was insisting since I was 10 that what I was feeling wasn't normal. It was making me cry after I had learned to no longer cry anymore for many years due to abuse, so this pain had to have been something very severe to make me cry like that, but instead of being taken seriously I was told "stop exaggerating", I was called a liar, I was told that I was being dramatic, and I was called a drama queen, even though I was not crying when getting beat up and bloodied, so they should have known that something had to have been very wrong for this to be the thing to make me cry. The pain was a lot worse than superficial bruises.
I was feeling unevenness in my step since I was 12. That got dismissed as delusional as well.
When it got discovered by the school nurses when I started high school at 13 that I have scoliosis, it barely got treated. My mom said no to surgery, no to any other form of treatments, and she didn't want to take me to see any more doctors for it. Just 2 very poorly done x-rays that didn't even get me from the side to see that I had a neck injury or lordosis, just two $300 braces that I grew out of almost immediately and that's it. No replacement for it after I've grown. Got purple sides and sciatica and spine got way worse by still wearing it when it didn't even fit me anymore. No research. Just the bare minimum so they could say that they did something. I am guessing it was to protect herself from suspicion of abuse?
One day I couldn't move anymore. Couldn't chew or swallow anymore. After 4 days of starvation and losing my job, I ended up taking myself to the ER somehow, I got x-rayed, then saw some more doctors. All of this coming out of my own pocket because my mom was still refusing to help me, so I ended up spending all of my savings on getting better. I now know, or the doctors suspect, that my condition actually stemmed from a neck injury of unknown cause since they see some pretty bad whiplash and signs of ligament damage at every level of my cervical spine, and they said that I had scar tissue and knots all over my back in my muscles, and they added that based on how stubborn and set in the wrong way my neck was, the injuries to it had to have been from a very long time ago, left untreated, and it healed that way. They said it looked as if I had been in numerous accidents. My neck being stuck slanted like that created an unevenness that transformed my whole spine, starting with the shoulder blade level first, and hip level second.
It definitely was not hereditary since none of my siblings, parents, parents' siblings, grandparents, great grandparents, 1st, 2nd, 3rd, 4th, 5th, 6th or 7th cousins or their children or parents have it. That is over 300 family members. It is literally just only me, so I feel that it had to have been from one of the MANY times my mom hurt my neck, from some of the MANY times my back / spine was punched and kicked up as a child, from the years of malnourishment, or a combination.
My parents had the money to treat me at the time but they did not want to sacrifice the nice car, didn't want to downgrade from the several million dollar home, they ended up losing it anyway with the economy affecting what they did for a living and after getting sued for things and after being investigated and other things, but after this my mom still made enough money to go on trips all over the world with all my siblings and cousins and their girlfriends and boyfriends without telling me about these trips beforehand, so that I can't prepare to come along... without taking me with them, and without helping me afford my back treatments...
The lack of treatment for so long made it get so much worse over time. The treatments could've been a lot less expensive and a lot more lasting if I was treated back when it was mild as a teenager. This frustrates and infuriates me.
I am trying so hard to turn my life around after having such a bad start at life, but my condition causes a lot of other health issues like throwing up, severe migraines and having sudden knife pains in my spine to where I drop everything in my hands, or to where I myself drop. Sometimes I can't even move. I called in sick or got sent home from work often enough to lose past jobs. Help me turn my life around for the better. It all starts with treatments but earning money right now is difficult. I am currently working on alternative ways for me to make money. Not just from on here, but also on my own, but $15k to start is a lot...
More info about my spine: My x-rays show signs of ligament damage in my neck at the C2-C3 & C3-C4 spinal levels, and more damage at C4-C5, C5-C6, C6-C7 and C7-T1 spinal levels, and my neck has a shifted atlas off its axis at C2. I also have a moderate-to-severe 41.4 degree S curve, and I have mild lordosis. I’m currently trying to give scoliosis reduction treatments my all. If it gets any worse, I will have no choice but to get surgery to deal with the breathing and heart problems it causes, to stop the spine from twisting more, and to stop the pain, but it would come at a cost... Surgery costs a whole lot more than other spinal correction methods, and it causes a loss of back flexibility for life. I hope it never comes down to this. I really love swimming, yoga, pilates, and the kind of gymnastics that's high flexibility/low impact. My doctors advised me to keep on doing it, as these activities are actually very good for people with scoliosis. It helps improve flexibility & mobility in a condition where there normally wouldn't be much of that, it helps with pain management, and the overall health of the spine. Lately, I haven't been able to do these things anyway, but I was told that with persistence in my at-home care in conjunction with frequent doctors visits, I can get it back. Having to lose these things permanently due to needing surgery would break my heart, so I'm trying to afford to go to this scoliosis reduction center in my state so that hopefully surgery will never be the only option left.
Scoliosis causes the following problems in the body:
- It interferes with signals from our nervous system. When our spine curves abnormally to one side, it compresses nerves along the inner curves and stretches them along the outer curves. As a result, our nerves struggle to conduct important signals regarding sensation to and from our extremities. Scoliosis disrupts signals from the body to the brain which causes everything in the body to not function optimally.
- We experience icy-hot sensations, pins and needles sensations, and tingling sensations in our arms or legs. We get radiating pain known as radiculopathy. (I experience this.)
- Aside from tingling pain, radiculopathy can affect both fine and gross motor control. (Fine motor control involves using small muscles to complete intricate tasks like snapping Legos together. In contrast, gross motor control involves recruiting our large muscle groups to complete big-movement tasks like jogging.) (I did feel more awkward and disjointed in doing gross motor tasks when my scoliosis started developing, but I haven't noticed any compromise in my fine motor skill. I am so grateful for that.)
- In severe cases, radiculopathy can also affect the nerves that control our bowels and bladder, resulting in incontinence. (I don’t have this one, thank goodness, but that could always change. Update 11/1/2024 - I just started experiencing this one too.)
- It results in really painful muscular imbalances. (I suffer from this.)
- It prevents CSF (cerebrospinal fluid) from recirculating to your brain.
- Muscular imbalances result in tension headaches and then the way scoliosis prevents recirculation of cerebrospinal fluid (CSF) to the brain reduces the levels of CSF in the brain, intensifying that simple tension headache, and turning it into a full-blown migraine. (I experience this one. I get severe migraines when I’m not being treated. Those migraines started when I was 6 years old.)
- It interrupts our digestive processes. When a spine deviates from its normal position, it takes up prime real estate that would otherwise be reserved for our organs. The esophagus, stomach, and intestines suffer the consequences. (I have this one pretty badly.)
- In individuals with severe scoliosis, the facial muscles that enable chewing can suffer dysfunction. Likewise, the abnormal curvature of the neck can constrict the esophagus, making it difficult to swallow. (I’ve experienced things like this before treatments along with shooting knife pains in my neck when I’m chewing, but after some treatments I’m okay.)
- Compression of the stomach and intestines due to scoliosis can result in failure to adequately absorb essential nutrients, painful build-up of stomach acid, resulting in acid reflux and nausea, feeling full before your nutritional needs are met, Irritable Bowel Syndrome (IBS), constipation, and weight loss (to a dangerous degree). (This one is my very worst one. I’ve almost died in the past from this one. Also costed me jobs.)
- It compromises the female reproductive system. (To my knowledge, I don’t have this problem.)
- It reduces our cardiac output and respiratory capacity. Scoliosis can interfere with our ability to take full, deep breaths. This is especially true for individuals who have severe scoliosis curves measuring more than 80 degrees. Internally, the rib cage cannot expand fully enough to deliver an adequate oxygen supply to the lungs. As a result, an individual may feel chronically short of breath. (Yes… It is awful. I’m so short of breath, in the shower, after I eat, or when I try bending, and I often end up fainting, getting lightheaded, losing balance, etc.)
- Similarly, severe scoliosis can reduce our cardiac output. Just as the lungs require room to expand, the heart also requires space to beat. More often, this causes the heart to work harder than is strictly necessary and results in mitral valve prolapse. In the most severe cases, this can lead to premature heart failure.
Organizer
Alexis Sooklall
Organizer
West Palm Beach, FL