Please Help Liam Rebuild his Spine!

Hi, I’m Jennifer and I’m the luckiest mom in the world; I’m mom to Liam (plus 3 other amazing, beautiful boys)!!! Liam is the most amazing, bravest, kindest, most loving 16 year old boy you will ever meet! He has a heart of gold and would do anything for anyone. Liam had had a rough road for 16 years and has never complained, never asked for anything… now we’ve

come to a point where I am asking for your help and support please.

Liam, as most of you know, has Sotos Syndrome which is the cause of his severe scoliosis, severe restrictive lung disease, learning disability, ADHD, autism, muscle weakness, etc. The road has been long and hard for Liam and he hasn’t had an easy life. His life has been filled with out-of -state surgeries, every 6 months, since he was 17 months old! And we couldn’t be more thankful for the help and medical care we received; Liam wouldn’t be where he is today without it! The plan was always to do VEPTR surgeries, with multiple spinal fusions, to help correct his severe scoliosis, until he was about 16! Well, unfortunately, Liam’s spine had other plans.

About a year ago, we noticed Liam’s spine curving significantly despite being fused along with decreased lung function (at this time, Liam had one working lung at around 27%)!! X-rays we’re sent to his amazing dr in Utah and his spine had gotten worse… we would attempt another fusion in July 2021. Again, Liam’s body had other plans… fusion didn’t take and Liam went into stage one heart and lung failure; his scoliosis was literally crushing his heart and lungs…

Liam needed help and quick! Thankfully several appts and phone calls and research and frantic mom reach-outs later we found a specialist in NY who would help

us and could help us!! Thank God! We had our first visit/consultation in October 2021 and surgery was scheduled for January 2022. Unfortunately, due to Covid, we’ve been pushed back a few times and surgery is next week, 2/17/22, in NY!! This will be the first of a few surgeries Liam will need to literally rebuild his spine. Drs have said that Liam’s spinal deformity is one of the worst they’ve ever seen…

Needless to say, these extra out-of-state medical expenses and trips to NY have been taxing on our family along with the fact that this is the second year I haven’t worked to be able to care for Liam and his medical needs. We need your help please. It’s hard for me to ask… but we’ve come to a point where we need help. So many have asked how they can help, or have helped already, and it is so greatly appreciated! XO Positive thoughts and prayers are also greatly appreciated!! Thank you!! XO