Help Lindsay Beat Brain Cancer

Earlier this year (2022), in May, Lindsay went to the Emergency Room due to experiencing what we now know was a type of seizure. Unfortunately, the ER doctor misdiagnosed her and told her she just needed rest. Her symptoms worsened over time with headaches, fatigue, and declining cognitive ability. On July 31, she experienced severe headaches, nausea, and a more intense seizure. After consulting Lindsay’s aunt (an ER doctor), the decision was made to get Lindsay to the ER ASAP and ensure they did the necessary brain scans. Her husband, Ken, rushed her to the emergency room, taking their 7-month-old son, Jaden, with them. Despite going to the same ER with the same symptoms, the team was shocked that no scans were done during the visit in May. After being scanned, Ken and Lindsay were given the devastating news that her brain had a large tumor in her left temporal lobe, significant swelling in the area, and a shift of her brain’s midline. Lindsay was immediately hospitalized and given IV medication to decrease brain swelling.

On the morning of August 2nd, she underwent brain surgery to remove the tumor. Initial pathology revealed a probable glioblastoma, a cancer of the brain tissue. However, there were other findings that were not consistent with a glioblastoma. Therefore, additional testing was performed by UCSF Health. After completing the test, UCSF Health consulted with the National Institutes of Health for further extensive evaluation. Finally, in mid-September (more than a month later), it was confirmed that Lindsay’s brain cancer was categorized as pleomorphic xanthoastrocytoma. This rare cancer accounts for less than 1% of all brain cancers, with very little research and information about how it affects the individual. Although little is known about this type of brain cancer, we remain hopeful and pray for her recovery.

Lindsay underwent an arduous recovery process, including multiple medications plus physical, occupational, and speech rehabilitation therapy. She relearned how to walk unsupported and speak more clearly, and gained enough energy to spend a little time with her baby Jaden every day.

After much planning by her care team, Lindsay began radiation and chemotherapy treatment on October 5th. This, unfortunately, causes more side effects of profound fatigue, pain, and sleeplessness. With a long road ahead, she continues to meet with her care team and undergo additional tests and evaluations. She has been bravely staying the course, but each day is an emotional and physical struggle dealing with the treatment process and the unknown.

Lindsay and her family appreciate any donation that can help lift the burden of financial stress from the inability to work and medical bills, allowing them to focus on her treatment and recovery. Thank you so much for your love and support.