Help Lisa live her best life, while she still can

Nov 19th update - Lisa, Chris & Evelyn battle on ❤️

If you can find it in your heart to spare a donation and to share this story,  so we can help at this desperately difficult time.

Lisa to loves to hear these messages of support and is incredibly grateful for the generosity.

Thank you.

Sara

Update - incredibly sadly Lisa & her family have learned that Lisa is in her last 6 months. While they re-adjust and come to terms with this news, please find it in your heart to make a small donation, so we can get Lisa to Disneyland with little Evelyn & Chris, to fulfil her dream and allow them to make important memories.

Thank you so much for your thoughts & donations.

Sara

Hi, I'm Sara,

I'm just one of a small team of people supporting Lisa and her family who has motor neuron disease (MND). MND is an uncommon condition that affects the brain and nerves, it causes the muscles to degrade and deteriorate because the disease attacks the nerve signals from the brain to parts of her body. Lisa was diagnosed in October 2020 during the first lockdown and very sadly, MND has a life expectancy of 3 - 5 years.

I am raising funds on this page so that Lisa can lead the best possible life with her family right beside her, so they can be forever wrapped in Lisa's love and Evelyn can continue to be inspired by her mum and so they can stop worrying about the house and its bills and focus on loving each other.

Lisa has only just turned 40, and married her husband Chris just 3 years ago. They have a beautiful daughter Evelyn, who turned 5 years old in August. Evelyn herself had a difficult start, she was born prematurely at just 25 weeks.

Lisa is now approaching the advanced stages of her condition. She is unable to walk or move independently. She has all her medicine, nutrients, and fluids via a PEG tube in her tummy, due to Lisa's inability to swallow well enough to avoid choking. Lisa gets extreme tiredness, she is almost always in constant pain, and her muscles constantly twitch and her voice is sadly disappearing.

Lisa still has some movement but is very slow, stiff and restrictive. She just has enough movement to give her daughter a good mummy cuddle and to stand for a short time using special equipment.

Sadly we don't know how long Lisa has left and is deteriorating every day.

This is where you lovely guy's come in thank you so much for reading.

Let's start with the basics, Lisa & Chris have a lovely home, but it doesn't fit their needs now.

Lisa needs a lift put in the house, she currently uses a stairlift with help but it is now a struggle. Once upstairs, this still leaves her immobile. She can be pushed on her wheeled chair, but it isn't easy, the carpet makes pushing the chair difficult. It desperately needs hardwood floors upstairs and downstairs asap.

It's very important to Lisa that they keep the family dynamic as normal as possible.

They have a family bathroom which is not fit for Lisa's needs. It's very small, tired, and falling apart - Lisa needs an adapted wet room so she is able to have a wash.

Downstairs, they have a nice but tired kitchen, their oven recently broke and currently have a temporary oven that doesn't fit, a broken freezer, a leaking fridge, and creaking cupboards. They also have a boiler that needs replacing due to it being condemned.

Outside, the family has a lovely big square patch of grass for a garden but Lisa is unable to access it without the use of a temporary ramp. Raising the patio with the ground floor would be ideal. It would be great to create a quiet space, with maybe some water features for Lisa.

Not only does Chris look after both his girls at home full time, including all shopping, washing, cooking, driving, and managing all Lisa & Evelyn's appointments, Chris also works in the neighboring town, co-ordinating Lisa's care plan, dance & swimming classes for Evelyn, and therapy appointments.

There is an endless list of things Lisa needs to support her best life, but I also know it is important to Lisa for some of the donations to be given to MND to support the continued research, and in supporting premature birth charities.

Lisa has said she wants to do a parachute jump, which to be honest is unlikely to be safe now, Chris has said he will step in and do it for Lisa, but there are other ideas and so much more you can help with.

This brave lady has a bucketful of things she would like to see and do before her illness makes them too difficult to achieve. Both mum and daughter are Disney mad, and it's Lisa's lifelong dream to take Evelyn to Disneyland in the near future. With Lisa deteriorating, this is a priority.

It's when you meet people like Lisa - who always wears a beautiful smile - that you realise how precious life really is and how cruel & sad MND is. Please share Lisa's gofundme page and if you can spare a small donation to help Lisa and her family, together we can help make Lisa's dreams come to life.

Thank you so much for reading and for your help, it really is appreciated.

Sara x