
Help LO with his ALS Challenge
There are no words to describe how heartbreaking it is for me to disclose the news of my father’s debilitating disease. Phimphone Simpraphone AKA: Lo was diagnosed with ALS or Lou Gehrig’s disease earlier this year. Amyotrophic Lateral Sclerosis (ALS) is a progressive disease that destroys the motor neurons that carry signals from the brain to the muscles. Muscles become weaker, leading to difficulty performing daily tasks, walking, swallowing and breathing. It affects men slightly more than women, and typical age of onset is 40-60. There is no known cure. Approximately 80% of people with ALS die within 2-5 years of being diagnosed. Some will live 10 years or longer (Stephen Hawking for example, but he was a very rare case). The average cost of ALS to a US family is $16,000 to $250,000.Those close to Lo know that he is a strong and determined man. He refuses to simply give in to this dreadful disease. Lo and his family and friends have been researching ways to hopefully extend the limited time that he has remaining and increase his quality of life during the difficult battle with ALS. One of Lo’s biggest concerns is the future of his two kids during this crisis. We are both very hopeful and want to relocate him to be comfortable with his son, Johnny, to Texas within the next week or two.
My father’s life has drastically been affected as he has been unable to work. The financial stresses that our family will be burdened with are beyond our resources, hence this GoFundMe page. From what we understand, we can expect to incur unanticipated costs over and above the following:
-wheelchair accessible entrance and interior of house
-bedroom upgrades
-uncovered medical expenses
-ventilators
-future caregiver expenses
-trips to visit medical professionals in Texas
-end of life planning
My father has been in the ICU in critical condition at Mercy Hospital in Fort Smith Arkansas, but is stable enough to finally be transferred to Plano Texas where he can be closer to family. Our biggest cost and concern right now is the emergency ambulance cost to transport him from Arkansas to Texas. We are hoping to get him to a better facility that is equipped to deal with his ALS and to a safer place where he can receive trial medication called Riluzole that will slow ALS and reduce discomfort, but again there's no cure.We are asking for your help to support Lo and his family through the struggle with ALS. We have set the fundraising goal to $16,000.00 since he needs to be transported for better care and eventually set up in his son’s home to spend the rest of his remaining time with us. Any amount would be greatly appreciated, and if you cannot donate at this time, maybe you could share this with others in your circle of friends.