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Help Lori Overcome Her Rare Medical Condition

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I’ve just decided that I’m going to do a Go Fund Me Page for myself. Some friends have been talking about doing it, but I’m running out of time. I just found out that I did damage to my heart from losing so much weight. I’ve lost 60 lbs. I thought the chest pains were just from stress, but it’s more serious. I know many people are going to think it’s tacky that I’m doing one for myself, but I have a 9 yr old & I’m her whole world. I know a woman who recently did a Go Fund Me to raise $3,000 for her sons to play basketball, her husband works part time & people pay her to bake for them. I cannot work, if I could, I would! I know another girl who does Go Fund Me every year to take her kids to Disney & she makes over $5,000 by doing that! This is my life I’m talking about! My husband’s medical insurance pays 90%, I am responsible for that other 10% which adds up fast. I can never answer my phone cuz it’s usually a medical bill collector, I can’t go to any dentist in area & only a few doctors. They not only call, they text, email & write letters, daily. Believe me, if I could work, I would be! I’ve applied for disability on the advice of my doctors. I recently received a letter saying it’s going to take another 9 months for a determination & if I don’t do something soon, I won’t be around in 9 months. I hate going out in public because I see people staring at me & thinking I’m on Meth! It took 18 months to diagnose me because I have an extremely rare condition & mainly the people that get it have scoliosis, which I have. I had a long, horrible surgery when I was 14 that no kid should have to go through, but my spine was curved like an “S” & they told my mom if I didn’t have the surgery, my spine would crush my heart within a few years. So, I have metal rods in my back but everything still isn’t exactly where it should be. Then , after having Jess at 46, a year later, all my teeth started going to hell - Dr & Dentist say it’s hereditary & a big part is from having a baby so late in life. I ran out of dental insurance & didn’t have money to pay for the crowns after going through all the pain of the root canals, so my teeth just rotted out. I ate diet ice cream for over 3 years trying to preserve the teeth I had left. I lost a lot of weight fast which after 18 months of tests, I was diagnosed with Superior Mesentary Artery Syndrome, it’s a super rare condition & less that 10% of the worlds population gets it. Mainly only people with Scoliosis, like me get it. When I lost weight from my teeth, I lost a fat pad that separates my Superior Mesentary Artery & my Small Intestine. So, that explains the constant pain, nausea & vomiting. My artery is getting stuck in my small intestine. All the doctors have said I could have a risky surgery, which would have to be done in Chicago & it’s very risky, involving that main artery & I could bleed out & there’s still no guarantee that would stop the pain & nausea. My other choice is to get the teeth I have left pulled & get fake teeth. I’ve been to 3 dentists & they all say the same, my mouth is very small, which is why I needed braces & my gums are so bad, they think I couldn’t tolerate dentures, where u have to put them in & take them out daily & I choke. So my Surgeon, Doctors & Dentist think I should get the all on 4 implants, where they are permanently implanted. By getting these, my drs are pretty confident that by eating healthy solid foods again, that I haven’t had in years, I will gain weight & gain that fat pad back. I’m making a Go Fund Me for myself because if something doesn’t happen very soon, I’m not going to be around this fall. I’m malnourished, anemic, diagnosed with severe depression & anxiety & fatigue. I can barely get out of bed most days. So, this is why I’m doing a Go Fund Me. Jessica would be lost without me, she’s only 9 & we’re together constantly. I just want to live a normal, healthy life. I know there’s people with cancer, who will never be able to do that, but my condition is probably treatable, as long as I can get teeth to eat & get that fat pad back. I’ve always helped others in any way I could & donated to many Go Fund Me Pages. I’m calling on my friends & community to please help me out now, when I desperately need it. Please donate so my 9 yr old daughter doesn’t have to grow up without a mother. I want to be completely transparent with everyone since I’m begging you for money. My husband & I don’t keep our money together & my only source of income is selling anything I can on eBay & making bracelets, I’m swimming in medical debt, so no one will give me a loan or finance my dental work. The condition I have is called Superior Mesentary Artery Syndrome & it’s extremely rare. If you would like to know more about it, or have any questions, I’d be happy to answer them. Never, in a million years, did I think I’d have to resort to going on social media & begging strangers for money, but my time is running out fast. Thank you for reading this. Jess, Ben & I wound grateful for any donation & PLEASE SHARE THIS Thank you, Lori, Ben & Jess❤️❤️❤️❤️❤️❤️❤️ Update as of Sunday, June 16th, we‘be raised $80 & I’m extremely grateful to the people who’ve donated, they’re the ones with the least amount of money, but I’m not surprised because I’ve known they are my true friends. I wish I wouldn’t have made this gofundme because it’s made me even more depressed to see that my life isn’t worth donating even $5 to. I know times are hard on everyone, but $5 is less than what most of my friends spend at Starbucks or Dunkin Donuts everyday. Only a few friends have shared my post, too. It doesn’t cost a dime to hit the share button. I need to start making as many bracelets as I can & have a garage sale asap, but I’m in so much pain today, I can’t do anything & tbh my depression & anxiety have gotten worse. I can’t help but take this very personally that only 4 people have donated & my friends won’t even share this. Jessie & I are going to start making more bracelets when my hands aren’t shaking & I’m going to look into other ways to raise money. Thank you so much Mike, Jana, Amanda & Carol. I know $20 is a lot to u all, I can repay u I’m bracelets. I truly appreciate it & ty to everyone who’s shared it. I’m eternally grateful! Lori & Jess❤️
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Donations 

  • Anonymous
    • $100
    • 1 mo
  • Megan Aubry
    • $600
    • 2 mos
  • Carole Harris
    • $100
    • 2 mos
  • Anonymous
    • $20
    • 7 mos
  • susan Gossman
    • $20
    • 8 mos
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Organizer

Lori LeRoy
Organizer
Joliet, IL

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