Help Madison Beat Brain Inflammation

Thank you all for your donations so far and continued support! Maddie has had many ups and downs in the last few months and two hospitalizations for kidney infections, as she is on immunosuppressive medications to control her immune response which leaves her susceptible to severe infections. She is also now in a partial hospitalization program to help with ARFID (avoidant restrictive food intake disorder) that developed as a result of a brain inflammation flare in april. We appreciate any and all support, shares, and donations as usual! Here are some things that future donations will be used for:
-A smart drive electric add on for Madisons wheelchair to help her be more independent when out with friends
-Meals for the family when Maddie is in the hospital or in a flare
-Enjoyable activities and distractions like Legos during flares
-Supplements from her integrative care doctor that insurance does not cover
-Various chronic illness aids (that are also on her amazon wishlist), such as ice packs, products for nausea, and braces for joints.

Madison Bean is the type of person that brightens the life of everyone they meet.  I met Maddie in a group chat of people struggling with health problems, and though it was only a few years ago, I can't imagine a world without her. Maddie is kind, encouraging, positive, brilliant and bold. In my opinion, everyone needs a Madison. She is my support system, and she is my best friend. While I have only watched their most recent battles, Maddie has had a lot on their plate for a long time, dealing with a range of severe symptoms since they were a child. She was extremely resistant to medications and treatments, and it was unclear what was causing these problems or making them so unstoppable.  Earlier this year, it was discovered that she has PANS, or pediatric acute neuropsychiatric syndrome, which put everything into perspective. PANS is a type of autoimmune encephalitis, or brain inflammation caused by faults in the body's immune system. The symptoms Maddie has experienced due to PANS include migraines, insomnia, blurry vision, suicidal thoughts, academic/cognitive declines, OCD (obsessive compulsive disorder), and more. These tie back to what she has been experiencing her entire childhood.  PANS is very treatable if caught early, but since Maddie went years without proper treatment, she now deals with rheumatoid arthritis and dysautonomia (severe dysfunction of the body's autonomic nervous system, which controls heart rate, temperature, and blood pressure).  The diagnostic testing and treatment a PANS diagnosis requires is extremely expensive, and it puts a great strain on the Bean family. Madison is currently seeing an excellent care team, but a lot isn't covered by insurance. She need several tests as well as medical equipment that was recommended by her doctor. This currently adds to over $2,000 monthly out of pocket, not including insurance copays, supplemental medications, out of pocket therapy, and travel for appointments. Without this testing and treatment, Madison will have to wait for relief until she can finally get the "gold standard" medical treatment for PANS, which is IVIG. This treatment is too expensive for any family to pay for, and insurance will not cover it without a lot of fight. Despite continuing to deal with life changing symptoms caused by PANS, Maddie remains positive everyday. Madison and the Bean family would greatly appreciate any monetary donation to help out with the rough path forward.