Help Malaika Regain Independence

Hi!! My name is Malaika! I am a Black transmasculine educator in Philadelphia, living with Hypermobility Ehlers-Danlos Syndrome (hEDS), and several of its comorbidities. Daily, I am plagued with insomnia, debilitating chronic pain, vomiting & other digestive issues, vocal chord dysfunction, brain fog, chronic fatigue, random allergic reactions, dizziness/lightheaded spells, and respiratory problems. These symptoms greatly impact my energy levels and mobility; most recently, my ability to leave the house consistently, work full-time, and regularly engage with my communities has dwindled. Consequently, I feel isolated, and that my independence has been stifled. However, I do not give up easily, and after much discussion with my PT & doctor about mobility aides, I have decided to become an ambulatory wheelchair user! Since my disability has forced me to become a part-time teacher without summer pay and wheelchairs are expensive, this fundraiser is to cover the cost of the electric wheelchair (approx. $2,400 before tax & shipping) and help me pay for rent, food, household necessities, medications, and medical supplies for the summer. Please share and donate - I am eager to regain some sense of control over my life as a disabled young person. Thank you!

What is Hypermobility Ehlers Danlos Syndrome?

hEDS is "a heritable connective tissue disorder that causes generalized joint hypermobility, joint instability, and chronic pain. hEDS is also associated with a variety of other symptoms and related conditions that affect many different areas of the body." -The Ehlers-Danlos Society.

What is an ambulatory wheelchair user?

An ambulatory wheelchair user is someone who can sometimes walk without support but sometimes needs a wheelchair to help them get around.