HELP ME AND MY MND

In June 2021, at the age of 36, I was diagnosed with a horrific condition called Motor Neurones Disease.

 

Once a keen runner, I completed a number of half marathons while raising money for the Motor Neurons Disease Association, I would have never thought I would now suffer from this debilitating disease.

 

What started life as an innocent twitch in my arm has now slowly progressed into twitching in most of my upper body and now little to no strength in my arms and hands.

The progressive nature of this disease will eventually lead to me having no muscle strength and even the ability to swallow and, last of all, to breathe.

 

With no cure and little to no treatment available to help me, I have no choice but to research and find alternative medications from other countries. The medicines from these countries have

promising results in slowing down the progression of MND, but as you can imagine, these come at a considerable cost. Still, I’m willing to try anything to help alleviate and prolong my life as much as I can with Carly, my wife and my three beautiful young children, Harry, George & Rosie.

 

We live in a typical two up two down terrace house in Bournemouth. My family and I are worried at the prospect of what lies in store for us in the future. We will also need to make urgent alterations to our house to allow for wheelchair access, a wet room and potentially add a downstairs extension to make room for a 3rd bedroom.

Any help is gratefully received.

Thank you for reading.

But like eveything, this comes at a huge cost.

 

On top of everything, after finding a job and career I love as a Barber, I now have to make the hard decision to cut back on work due to the weakness I struggle with daily.

It is why I reluctantly ask for any help to make our lives a little bit easier as I progress.

 

Any donations would be gratefully received and put to good use to help improve mine and my

family's quality of life.

 

Thank you so much for reading and for any donations made.

 

James

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@diagnoseddad