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Help Me Continue My Infusion Treatments for Lupus

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Hi everyone!

My name is Rachelle. I am a Diné Woman fighting Systemic Lupus Erythematosus & Lupus Nephritis. My whole journey with getting a diagnosis has been a very long & hard fight. Throughout the years, I was met with dismissive doctors who gaslit me & blamed my lupus symptoms on my reproductive system & being "anemic", refusing to further test me for various health issues. 

Now, I am living with two types of Lupus & several autoimmune diseases- two of which are rare. I now see 9 specialists & continually have 3 to 6 month check ups, labs every few weeks, infusions, transfusions, multiple daily medications, multiple emergency room visits & a few hospitalizations this year.

My experiences going into my financial need begins here:

I received a call on Friday, December 15, 2023, from the infusion center I receive my treatment for Lupus & my rheumatologist - both informing me that my infusion medication, Benlysta, is no longer available as there is a national shortage. They have no idea how long this shortage will last. 

My rheumatologist did strongly recommend that I continue my infusion treatments for SLE with a different medication called Saphnelo. He made this decision based on my increased flare-ups, kidney issues & hospital stays this past year. Which I agree to do, but I pay out of pocket. His practice stopped taking my insurance at the beginning of this year. So, I now pay for his services because he is the best rheumatologist I've ever had & is knowledgeable with the rare diseases I am suffering from. 

The reason why I am unable to set an appointment is because I need to pay a delinquent bill I've been trying to pay for since May. I fell behind a few months ago & their practice refuses to see me until I am either caught up or have the bill paid off. 

So, here I am, reaching out to community for support, to help me pay this bill off. I need to pay it by the end of December, before my next infusion is due. My rheumatologist must see me for an evaluation & labs before prescribing my new treatment & pushing for my insurance to get it approved quickly so I do not miss a treatment. Missing treatment & stress could cause a major flare-up or more organ damage, or both. 

Please help me alleviate this financial stress & help me stay on track with my treatments for Lupus. I would truly appreciate any amount given, as it will allow me to set a sooner appointment date. 

Other ways to donate via money transfer apps:

Venmo: @Rachelle-Raelynn 
CashApp: $rraelynnyazzie 
PayPal: @RachelleRaelynn
Zelle: [email redacted]

Tʼáá íiyisíí ahéheeʼ, nitsaago! Thank you very much!

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Organizer

Rachelle Raelynn
Organizer
Phoenix, AZ

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