Life-Changing Surgery : Parry Romberg Syndrome
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18 years ago I noticed a ringworm that developed under my left eye - and didn't get better when treated with anti fungal creams. The Ringworm progressed aggressively into my scalp and eye , it ended up as a dark patch ,with a hard texture. In a few months I noticed my little face atrophying to the left and my hair and teeth fell off on the left side.
This was Parry Romberg Syndrome, a rare and cruel condition that causes one side of the face to waste away as seen on my picture.
I was unfortunate to not get any help ,or any treatment since I was 12 years old, as doctors were clueless about it and didn't pay attention as I cried for help. It therefore progressed aggressively and affected the functionality of half of my face.
After coming across a Lukas Caldwel's ticktock who has Parry Romberg Syndrome too, I was made aware of the name of the condition for the first time ever.
I did my research and I found an experienced specialist in India who can perform three life-changing surgeries to restore my face and improve my quality of life.
I humbly request your help to raise £60 000 for the surgeries and travel expenses. Your donation will cover:
Surgeries to repair the facial damage and alleviate the pain.
Travel and accommodation to reach the specialist who can perform this vital surgery.
It has not only deformed my appearance but also brought constant pain, alopecia, severe migraines, and vision problems. The emotional toll has been devastating as i had to fight to live a normal life.
Every contribution, no matter how small, will bring me closer to a normal life filled with hope. Your generosity can give me a chance to smile again, both inside and out.
Please consider donating and sharing my story. Thank you for your kindness and support .
Kindly Connect with my journey on social media ❤️.
FB : Gillian Kgotla
Ticktock: iamGilian https://www.tiktok.com/@iamgillian1?_t=8ncI73VdPAu&_r=1
Love from
Gillian Kgotla Nkanokang
Organizer
Gillian Kgotla Nkanokang
Organizer