Declan, our warrior.

My story.. 3 years ago I gave birth to a beautiful baby boy, we named him Declan. He hit every milestone on time , sitting unassisted at 6 months, crawling at 8 months, pulling himself up before 10 months and of course walk (13months old)and learning to talk. At 15 months old our world came crashing down little by little confused on why our little boy stopped walk, and regression happened with all his skills in the last 2 years or so. This year with the help of his metabolic team at children's and the mayo clinic in MN we got a diagnosis. Declan has a very rare genetic disease, GM2- Gangliosidosis Ab Variant. It's a disease that affects the brain and nervous system. He is a 3 year old little boy that has to live as an infant due to this disease. He will be participating in the research study at the mayo clinic for this rare genetic disease as there's very little known about it. He is 1 out of 50 known cases in the world. This year has been the hardest my family has got through now knowing we will lose this sweet, loving little boy at some point.

We didn't think we'd hear so soon that our little warrior is losing his fight. Donations will help with anything before and after his passing.